Ascertaining breast cancer patient experiences through a journey map: A qualitative study protocol

PLoS One. 2020 Dec 21;15(12):e0244355. doi: 10.1371/journal.pone.0244355. eCollection 2020.

Abstract

Background: The current cancer care system must be improved if we are to have in-depth knowledge about breast cancer patients' experiences throughout all the stages of their disease.

Aim: This study seeks to describe breast cancer patients' experience over the course of the various stages of illness by means of a journey model.

Methods: This is a qualitative descriptive study. Individual, semi-structured interviews will be administered to women with breast cancer and breast cancer survivors. Patients will be recruited from nine large hospitals in Spain and intentional sampling will be used. Data will be collected by means of a semi-structured interview that was elaborated with the help of medical oncologists, nurses, and psycho-oncologists. Data will be processed adopting a thematic analysis approach.

Discussion: The outcomes of this study will afford new insights into breast cancer patients' experiences, providing guidance to improve the care given to these individuals. This protocol aims to describe the journey of patients with breast cancer through the healthcare system to establish baseline data that will serve as the basis for the development and implementation of a patient-centered, evidence-based clinical pathway.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Breast Neoplasms / psychology*
  • Breast Neoplasms / therapy*
  • Cancer Survivors / psychology*
  • Female
  • Humans
  • Patient Outcome Assessment
  • Patient-Centered Care
  • Qualitative Research
  • Standard of Care
  • Surveys and Questionnaires

Grants and funding

This work was funded by the Spanish Society of Medical Oncology (SEOM) in 2018. The sponsor of this research has not participated in the design of research, in writing the report, or in the decision to submit the article for publication.