Can Parents Restrict Access to Their Adolescent's Voice?: Deciding About a Tracheostomy

Pediatrics. 2021 Apr;147(4):e2021050358. doi: 10.1542/peds.2021-050358.

Abstract

Parents are the default decision-makers for their infants and children. Their decisions should be based on the best interests of their children. Differing interpretations of children's best interests may be a source of conflict. Providers' biased evaluations of patients' quality of life may undermine medicine's trustworthiness. As children mature, they should participate in medical decision-making to the extent that is developmentally appropriate. In this month's Ethics Rounds, physicians, a philosopher, and a lawyer consider parents' demand, supported by the hospital's legal department, that their 17-year-old son be excluded from a potentially life-and-death medical decision.

Publication types

  • Letter

MeSH terms

  • Adolescent
  • Airway Extubation / adverse effects
  • Decision Making / ethics*
  • Disabled Children*
  • Humans
  • Male
  • Parental Consent / ethics*
  • Parental Consent / legislation & jurisprudence
  • Postoperative Complications
  • Respiratory Insufficiency / etiology
  • Respiratory Insufficiency / therapy
  • Tracheostomy*