Service Use Among Transition-Age Youth with Autism Spectrum Disorder

J Autism Dev Disord. 2022 Mar;52(3):1051-1065. doi: 10.1007/s10803-021-04999-6. Epub 2021 Apr 17.

Abstract

This study explored predictors of service use among 174 transition-age youth (age 16-30) with an Autism Spectrum Disorder using Andersen's (J Health Soc Behav 36(1):1-10, 1995) healthcare utilization model. Family caregivers were interviewed about past 6-month use of 15 services. On average, youth used 6.1 and needed 3.2 additional services. Greater service use was associated with two predisposing (caregiver college educated, caregiver not married/partnered), two enabling (youth has Medicaid waiver, youth in high school), and one need factor (lower adaptive functioning). Use of specific services was most strongly related to enabling (Medicaid waiver, in high school) and need factors (lower adaptive functioning, comorbid mental health diagnosis). Findings provide a snapshot of the "service cliff" faced by families and highlight the need for additional research.

Keywords: Autism spectrum disorder; Family; Predictors; Service use; Transition age.

MeSH terms

  • Adolescent
  • Adult
  • Autism Spectrum Disorder* / epidemiology
  • Autism Spectrum Disorder* / psychology
  • Autism Spectrum Disorder* / therapy
  • Caregivers
  • Delivery of Health Care
  • Humans
  • Medicaid
  • Patient Acceptance of Health Care
  • United States
  • Young Adult