Community-Engaged Research: Leveraging Community-Academic Partnerships to Reduce Disparities and Inequities in Lupus Care

Cianna Leatherwood; Patricia Canessa; Karen Cuevas; Elmer Freeman; Candace H Feldman; Rosalind Ramsey-Goldman

doi:10.1016/j.rdc.2020.09.007

Community-Engaged Research: Leveraging Community-Academic Partnerships to Reduce Disparities and Inequities in Lupus Care

Rheum Dis Clin North Am. 2021 Feb;47(1):109-118. doi: 10.1016/j.rdc.2020.09.007.

Authors

Cianna Leatherwood¹, Patricia Canessa², Karen Cuevas³, Elmer Freeman⁴, Candace H Feldman⁵, Rosalind Ramsey-Goldman⁶

Affiliations

¹ Gilead Sciences, 1585 62nd Street, #8281, Emeryville, CA 94608, USA. Electronic address: ciannal@gmail.com.
² Lupus Outreach and Clinical Trials Education Program, Northwestern University Feinberg School of Medicine, 675 N St Clair, Chicago, IL 60611, USA.
³ Illinois Department of Public Health, Office of Health Promotion, 122 S. Michigan Avenue, Chicago, IL 60603, USA.
⁴ Northeastern University, Center for Community Health Education Research and Service, Inc, 360 Huntington Avenue, 222 YMC, Boston, MA 02115-5005, USA.
⁵ Division of Rheumatology, Inflammation and Immunity, Department of Medicine, Brigham and Women's Hospital, Harvard Medical School, 60 Fenwood Road, Boston, MA 02115, USA.
⁶ Medicine/Rheumatology, Northwestern University, Ste 14-100, 675 N. St. Clair St, Galter Pavilion, Chicago, IL 60611, USA.

PMID: 34042050
DOI: 10.1016/j.rdc.2020.09.007

Abstract

Community-engaged research is an effective tool to address health care disparities and inequities in lupus care. Community-based participatory research allows the highest degree of community engagement, but may be limited by the challenges associated with long-term funding and implementation. Community-academic partnerships are a feasible way to allow for varying degrees of community engagement and develop sustainable infrastructure. Two examples of community-engaged research in rheumatology are MONARCAS and Lupus Conversations.

Keywords: Chronic disease; Community-engaged research; Lupus; Rheumatology.

Publication types

Research Support, U.S. Gov't, Non-P.H.S.
Review

MeSH terms

Community-Based Participatory Research*
Healthcare Disparities
Humans
Rheumatology*