Quantifying Recruitment Source and Participant Communication Preferences for Alzheimer's Disease Prevention Research

J Prev Alzheimers Dis. 2021;8(3):299-305. doi: 10.14283/jpad.2021.20.

Abstract

Background: Evidence on effective engagement of diverse participants in AD prevention research is lacking.

Objectives: To quantify recruitment source in relation to race, ethnicity, and retention.

Design: Prospective cohort study.

Setting: University lab.

Participants: Participants included older adults (N=1170) who identified as White (86%), Black (8%), and Hispanic/Latino ethnicity (6%).

Measurements: The Cognitive Aging Lab Marketing Questionnaire assessed recruitment source, social media use, and research opportunity communication preferences.

Results: Effective recruitment methods and communication preferences vary by race and ethnicity. The most common referral sources were postcards for racial minorities, friend/family referrals for Hispanic/Latinos, and the newspaper for Whites. Whereas Whites preferred email communications, Hispanic/Latinos preferred texts.

Conclusions: Recruiting diverse samples in AD prevention research is clinically relevant given high AD-risk of minorities and that health disparities are propagated by their under-representation in research. Our questionnaire and these results may be applied to facilitate effective research engagement.

Keywords: Enrollment; diversity; research engagement; retention.

MeSH terms

  • Aged
  • Alzheimer Disease / prevention & control*
  • Black People / statistics & numerical data
  • Communication*
  • Cultural Diversity*
  • Female
  • Friends
  • Hispanic or Latino / statistics & numerical data
  • Humans
  • Male
  • Patient Selection*
  • Prospective Studies
  • Social Media
  • Surveys and Questionnaires / statistics & numerical data*
  • White People / statistics & numerical data