Experience of Information Provision at the Stroke Unit From the Perspective of Relatives to Stroke Survivors

Linda Kristensson; Ann Björkdahl

doi:10.1177/1179572720947086

Experience of Information Provision at the Stroke Unit From the Perspective of Relatives to Stroke Survivors

Rehabil Process Outcome. 2020 Aug 13:9:1179572720947086. doi: 10.1177/1179572720947086. eCollection 2020.

Authors

Linda Kristensson^{1

2}, Ann Björkdahl^{3

4}

Affiliations

¹ Department of Occupational Therapy and Physiotherapy, Sahlgrenska University Hospital, Gothenburg.
² Institute of Neuroscience and Physiology, Department of Occupational Therapy, Sahlgrenska Academy, University of Gothenburg.
³ Institute of Neuroscience and Physiology, Rehabilitation Medicine, Sahlgrenska Academy, University of Gothenburg.
⁴ Institute of Social Science, Ersta Sköndal Bräcke University Collage, Campus Bräcke, Gothenburg.

Abstract

Introduction: Stroke not only affects the stroke survivor, it also significantly affects their families. Given the important supportive role that relatives of stroke survivor have, they should receive information that helps them plan and cope with the new situation. The objective of the study was to explore how relatives to stroke survivors perceived the information provided by the stroke unit.

Methods: This qualitative study was based on extensive semi-structured interviews with an inductive approach. A heterogeneous convenience sample of relatives to stroke survivor (n=14) was selected. Qualitative content analysis served to analyze the transcribed interview texts.

Results: The content analysis yielded four categories, each with 2-3 subcategories. The overall theme was "to be acknowledged or not": it encompassed the underlying meaning and the relationships between the categories. The four categories were as follows: shifting information needs; striving for information; lacking of continuity and structure; and taking part and being acknowledged.

Conclusions: The study highlighted that the relatives of stroke survivors have a strong need for information and showed that the relatives experienced that they did not always feel satisfactorily informed and supported by the healthcare professionals in the stroke unit. A challenge for the healthcare professionals was to be able to give the right information at the right time and in the appropriate way. The study also showed that when the relatives were acknowledged and invited to participate in the rehabilitation process, they were less anxious of the discharge.

Keywords: Stroke rehabilitation; access to information; patient participation; time factors.