1 Department of Clinical Medicine, University of Bergen, Norway; Department of Neurology, Haukeland University Hospital, Bergen, Norway. Electronic address: nils.gilhus@uib.no.
2 Department of Neurology, Leiden University Medical Centre, Leiden, The Netherlands.
3 Norwegian Association for Muscle and Nerve Disorders, Oslo, Norway.
4 Myaware, College Business Centre, Derby, England.
5 Dutch Neuromuscular disease Association, Baarn, The Netherlands.
6 Nuffield Department of Clinical Neurosciences, University of Oxford, Hospitals Trust, Oxford, England.