The Promises and Perils of Social Media for Pediatric Rheumatology

Rheum Dis Clin North Am. 2022 Feb;48(1):233-243. doi: 10.1016/j.rdc.2021.09.005.

Abstract

The advent of social media has revolutionized and empowered communities of people living with rare diseases. Social media has enabled families of children with similar pediatric rheumatic diseases (PRDs) to meet regardless of geographic distance, allowing them to support each other and join together to advocate on behalf of their children. Researchers have also leveraged social media to learn about the health of patients and their communities. This article reviews the promises and perils of social media related to health, focusing on its potential use to support research and care of children with PRD.

Keywords: Digital technology; Patient support organizations; Pediatric rheumatology; Research; Self-help groups; Social media.

Publication types

  • Review
  • Research Support, Non-U.S. Gov't
  • Research Support, N.I.H., Extramural