A dyadic exploration of support in everyday life of persons with RA and their significant others

Scand J Occup Ther. 2023 Jul;30(5):616-627. doi: 10.1080/11038128.2021.2007997. Epub 2021 Nov 30.

Abstract

Background: Support from significant others is important for participation in everyday life for persons with rheumatoid arthritis (RA). Meanwhile, significant others also experience limitations.

Aims: To explore how support is expressed by persons with RA and significant others, and how support relates to participation in everyday life of persons with RA.

Material and methods: Sixteen persons with RA and their significant others participated in individual semi-structured interviews. The material was analyzed using dyadic analysis.

Results: Persons with RA and significant others reported that RA and support had become natural parts of everyday life, especially emotional support. The reciprocal dynamics of support were also expressed as imperative. Also, support from people outside of the dyads and well-functioning communication facilitated everyday life.

Conclusions: Significant others and the support they give are prominent factors and facilitators in everyday life of persons with RA. Concurrently, the support persons with RA provide is important, along with support from outside of the dyads.

Significance: The results indicate that the interaction between persons with RA and the social environment is central to gain insight into how support should be provided for optimal participation in everyday life. Significant others can preferably be more involved in the rehabilitation process.

Keywords: Dyadic analysis; participation; qualitative research; rehabilitation; rheumatic disease; social environment.

MeSH terms

  • Activities of Daily Living*
  • Adult
  • Aged
  • Arthritis, Rheumatoid* / psychology
  • Arthritis, Rheumatoid* / rehabilitation
  • Emotions
  • Female
  • Humans
  • Male
  • Middle Aged
  • Patient Participation / psychology
  • Qualitative Research
  • Quality of Life
  • Social Environment
  • Social Support*