Building a Platform for Meaningful Patient Partnership to Accelerate "Bench-to-Bedside" Translation of Promising New Therapies

Healthc Q. 2022 Apr;24(SP):74-79. doi: 10.12927/hcq.2022.26770.


Engaging patients as partners in the design and execution of early-phase clinical trials offers a unique opportunity to ensure patient perspectives are considered. Here we describe our experience partnering with four individuals with lived experience of blood cancer to co-develop documents and services to support participants of an early-phase trial. Through regular team meetings, patient partners co-developed a visual informed consent document and a non-technical summary of the informed consent document to facilitate participant understanding of trial procedures. Overall, patient partners highlighted important trial components that would not have been identified without their input.

MeSH terms

  • Clinical Trials as Topic
  • Consent Forms*
  • Humans
  • Informed Consent*
  • Patient Participation*