Ethical Considerations for Discrete Choice Experiments with Caregivers

J Empir Res Hum Res Ethics. 2022 Oct;17(4):426-430. doi: 10.1177/15562646221112339. Epub 2022 Jul 18.

Abstract

We discuss research ethics challenges experienced while running a discrete choice experiment administered to caregivers of children with treatment resistant pediatric epilepsy. We highlight ethical considerations around the study design of the discrete choice experimental paradigm that pertain to vulnerability of and caregiving burden on the population, imbalance of benefit-to-load of participation, and limitations of cultural meaningfulness and generalizability.

Keywords: discrete choice experiment; epilepsy; neuroethics; research ethics; vulnerable populations.

Publication types

  • Research Support, N.I.H., Extramural

MeSH terms

  • Caregivers*
  • Child
  • Ethics, Research*
  • Humans
  • Research Design