Establishing a blockchain-enabled Indigenous data sovereignty framework for genomic data

Tim K Mackey; Alec J Calac; B S Chenna Keshava; Joseph Yracheta; Krystal S Tsosie; Keolu Fox

doi:10.1016/j.cell.2022.06.030

Establishing a blockchain-enabled Indigenous data sovereignty framework for genomic data

Cell. 2022 Jul 21;185(15):2626-2631. doi: 10.1016/j.cell.2022.06.030.

Authors

Tim K Mackey¹, Alec J Calac², B S Chenna Keshava³, Joseph Yracheta⁴, Krystal S Tsosie⁴, Keolu Fox⁵

Affiliations

¹ Global Health Program, Department of Anthropology, University of California, San Diego, San Diego, CA, USA; S-3 Research LLC, San Diego, CA, USA; Global Health Policy and Data Institute, San Diego, CA, USA; BlockLAB, San Diego Supercomputer Center, San Diego, CA, USA.
² Global Health Policy and Data Institute, San Diego, CA, USA; University of California, San Diego, School of Medicine, San Diego, CA, USA; University of California, San Diego, Herbert Wertheim School of Public Health and Human Longevity Science, San Diego, CA, USA.
³ University of California, San Diego, Department of Computer Science and Engineering, San Diego, CA, USA.
⁴ Native BioData Consortium, Eagle Butte, SD, USA.
⁵ Global Health Program, Department of Anthropology, University of California, San Diego, San Diego, CA, USA; Native BioData Consortium, Eagle Butte, SD, USA; Indigenous Futures Institute, Division of Design and Innovation, University of California, San Diego, San Diego, CA, USA. Electronic address: pkfox@ucsd.edu.

PMID: 35868267
DOI: 10.1016/j.cell.2022.06.030

Abstract

Technological advances have enabled the rapid generation of health and genomic data, though rarely do these technologies account for the values and priorities of marginalized communities. In this commentary, we conceptualize a blockchain genomics data framework built out of the concept of Indigenous Data Sovereignty.

Keywords: blockchain; distributed ledger technology; genomics; health equity; iIndigenous health.

Publication types

Research Support, Non-U.S. Gov't

MeSH terms

Blockchain*
Computer Security
Genomics
Technology