Education on the consequences of traumatic brain injury for children and adolescents with TBI and families/caregivers: a systematic scoping review

Brain Inj. 2023 Jan 2;37(1):1-23. doi: 10.1080/02699052.2022.2145357. Epub 2022 Nov 25.


Objective(s): To examine the breadth of education or training on the consequences of traumatic brain injury (TBI) for children and adolescents with TBI and their families/caregivers.

Methods: Systematic scoping review of literature published through July 2018 using eight databases and education, training, instruction, and pediatric search terms. Only studies including pediatric participants (age <18) with TBI or their families/caregivers were included. Six independent reviewers worked in pairs to review abstracts and full-text articles independently, and abstracted data using a REDCap database.

Results: Forty-two unique studies were included in the review. Based on TBI injury severity, 24 studies included persons with mild TBI (mTBI) and 18 studies focused on moderate/severe TBI. Six studies targeted the education or training provided to children or adolescents with TBI. TBI education was provided primarily in the emergency department or outpatient/community setting. Most studies described TBI education as the main topic of the study or intervention. Educational topics varied, such as managing TBI-related symptoms and behaviors, when to seek care, family issues, and returning to work, school, or play.

Conclusions: The results of this scoping review may guide future research and intervention development to promote the recovery of children and adolescents with TBI.

Keywords: Family education; patient education; pediatric; self-management; traumatic brain injury.

Publication types

  • Systematic Review
  • Research Support, N.I.H., Extramural
  • Research Support, U.S. Gov't, Non-P.H.S.

MeSH terms

  • Adolescent
  • Brain Concussion*
  • Brain Injuries, Traumatic*
  • Caregivers / education
  • Child
  • Humans
  • Schools