French data on the epidemiology and expert healthcare network for epidermolysis bullosa

J Eur Acad Dermatol Venereol. 2023 May;37(5):e597-e599. doi: 10.1111/jdv.18826. Epub 2023 Jan 17.

Authors

Christine Bodemer¹, Louis Soussand², Arnaud Sandrin², Ahlem Khatim², Angélique Sauvestre³, Nabila Elarouci², Anne-Sophie Jannot^{2

4}

Affiliations

¹ Necker-Enfants Malades Hospital, Reference Centre for genodermatoses (MAGEC-Necker) University Paris Centre, Paris, European Network for Rare Skin Disorders (ERN-Skin), Paris, France.
² BNDMR - AP-HP - Campus Picpus Département I&D, Paris, France.
³ DEBRA France, Marseille, France.
⁴ Centre de Recherche des Cordeliers Paris, Université Paris Cité, HeKA INSERM, INRIA Paris, Paris, France.

PMID: 36545933
DOI: 10.1111/jdv.18826

No abstract available

Publication types

Letter
Research Support, Non-U.S. Gov't

MeSH terms

Delivery of Health Care
Epidermolysis Bullosa* / epidemiology
Epidermolysis Bullosa* / therapy
Humans

Grants and funding

Amryt Pharma