Autistic Perspectives on the Future of Clinical Autism Research

Heta Pukki; Jorn Bettin; Avery Grey Outlaw; Joshua Hennessy; Kabie Brook; Martijn Dekker; Mary Doherty; Sebastian C K Shaw; Jo Bervoets; Silke Rudolph; Thibault Corneloup; Kylieanne Derwent; Onemoo Lee; Yadira Garcia Rojas; Wenn Lawson; Monica Vidal Gutierrez; Kosjenka Petek; Myria Tsiakkirou; Annikka Suoninen; Jo Minchin; Rainer Döhle; Silke Lipinski; Heini Natri; Emma Reardon; Giovanna Villarreal Estrada; Ovidiu Platon; Nick Chown; Ayaya Satsuki; Damian Milton; Nick Walker; Ondrej Roldan; Bárbara Herrán; Citlali Limón Cañedo; Sue McCowan; Mona Johnson; Eleanor Jane Turner; Jessy Lammers; Wn-Ho Yoon

doi:10.1089/aut.2022.0017

Autistic Perspectives on the Future of Clinical Autism Research

Autism Adulthood. 2022 Jun 1;4(2):93-101. doi: 10.1089/aut.2022.0017. Epub 2022 Jun 9.

Authors

Heta Pukki¹, Jorn Bettin², Avery Grey Outlaw³, Joshua Hennessy⁴, Kabie Brook⁴, Martijn Dekker⁵, Mary Doherty⁶, Sebastian C K Shaw⁷, Jo Bervoets⁸, Silke Rudolph⁵, Thibault Corneloup⁹, Kylieanne Derwent¹⁰, Onemoo Lee¹¹, Yadira Garcia Rojas¹², Wenn Lawson¹³, Monica Vidal Gutierrez¹⁴, Kosjenka Petek¹⁵, Myria Tsiakkirou⁵, Annikka Suoninen¹⁶, Jo Minchin¹⁷, Rainer Döhle¹⁸, Silke Lipinski¹⁹, Heini Natri²⁰, Emma Reardon²¹, Giovanna Villarreal Estrada¹², Ovidiu Platon²², Nick Chown²³, Ayaya Satsuki²⁴, Damian Milton²⁵, Nick Walker²⁶, Ondrej Roldan²⁷, Bárbara Herrán²⁸, Citlali Limón Cañedo²⁹, Sue McCowan⁷, Mona Johnson⁷, Eleanor Jane Turner⁷, Jessy Lammers⁹, Wn-Ho Yoon¹¹

Affiliations

¹ European Council of Autistic People z.s., Prague, Czech Republic.
² Autistic Collaboration Trust, Auckland, New Zealand.
³ Autistic Self-Advocacy Network, Washington, District of Columbia, USA.
⁴ Autism Rights Group Highland, Inverness, Scotland, UK.
⁵ European Council of Autistic People z.s, Prague, Czech Republic.
⁶ Autistic Doctors International, Dublin, Ireland.
⁷ Autistic Doctors International, United Kingdom.
⁸ Lees- en Adviesgroep Volwassenen Autisme vzw, Antwerpen, Belgium.
⁹ CLE Autistes, Paris, France.
¹⁰ The Autistic Realm, Nowra Hill, Australia.
¹¹ estas, Seoul, Korea.
¹² Autistas de México, A.C., Ciudad de Mexico, México.
¹³ Independent, Warrnambool, Australia.
¹⁴ Mi Cerebro Atípico/Asociación Autistas de Colombia, Bogota, Colombia.
¹⁵ Incijativa za autizam i ostale neurodivergentnosti, Zagreb, Croatia.
¹⁶ Suomen Autismikirjon Yhdistys ry., Helsinki, Finland.
¹⁷ The National Autistic Taskforce, Lincoln, United Kingdom.
¹⁸ Aspies e.V., Berlin, Germany.
¹⁹ Autismus-Forschungs-Kooperation, Berlin, Germany.
²⁰ The Translational Genomics Research Institute, Phoenix, Arizona, USA.
²¹ Autism Wellebing CIC, Carmarthen, Wales, UK.
²² Asociația suntAutist-Autismul explicat de autiști, Timisoara, Romania.
²³ Independent Autism Research Group, Cradley Heath, United Kingdom.
²⁴ Otoemojite Neurodiversity Self-Help Group, Tokyo, Japan.
²⁵ The Participatory Autism Research Collective, Canterbury, United Kingdom.
²⁶ California Institute of Integral Studies, San Francisco, California, USA.
²⁷ Adventor, Prague, Czech Republic.
²⁸ Mi Cerebro Atípico, Lima, Perú.
²⁹ Independent, Jalisco, México.

No abstract available

Keywords: autism research; autistic people's priorities; collaborative participation; neurodiversity paradigm; participatory research.

Publication types

Editorial