The lived experience of caring for someone with bipolar disorder: A qualitative study

PLoS One. 2023 Jan 19;18(1):e0280059. doi: 10.1371/journal.pone.0280059. eCollection 2023.

Abstract

Being a close family or friend of someone with bipolar disorder (BD) can lead to experiences of increased stress, anxiety and depressive symptoms related to the burden of caring. However, the lived experience of being a carer for a person with BD has not received significant research attention. This study aimed to gain further insight into the experiences of individuals in an informal caring role for someone with BD and determine what additional information and support these people need to take care of both themselves and the person they are caring for. Fifteen qualitative interviews were carried out with carers discussing their lived experiences with utilising coping strategies and supporting someone with BD. Following the interviews, thematic analysis was used to identify five key themes. These themes were: Separation of the person and the disorder, carer health and coping strategies, unpredictability and variability of symptoms, carer disillusionment and silencing, and story sharing and support needs. Overall, the findings highlighted the need for increased in-person and online support specifically tailored for carers with loved ones experiencing BD.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adaptation, Psychological
  • Anxiety
  • Bipolar Disorder* / therapy
  • Caregivers
  • Humans
  • Qualitative Research

Grants and funding

that FKL is funded by a fellowship from the National Health and Medical Research Council of Australia, under grant G1901367. The funders had no role in study design, data collection and analysis, decision to publish, or preparation of the manuscript.