Retinal Detachment Prophylaxis for Patients With Stickler Syndrome: A Survey of Pediatric Retinal Specialist Treatment Preferences

Ophthalmic Surg Lasers Imaging Retina. 2023 Feb;54(2):102-107. doi: 10.3928/23258160-20230119-01. Epub 2023 Feb 1.


Background and objective: Stickler syndrome is the most common inherited cause of pediatric rhegmatogenous retinal detachment. The purpose of this study was to survey pediatric retinal surgeon preferences for prophylactic treatment of Stickler syndrome patients.

Study design: A voluntary, anonymous 27-question survey was developed by RedCap and distributed to the Association of Pediatric Retinal Surgeons. The survey was distributed on March 17, 2021. Results were tabulated on April 12, 2021 in Microsoft Excel. All surveys returned were included.

Results: Thirty-four (76% response rate) respondents completed the survey. Twenty-six (76%) reported primarily using prophylactic laser retinopexy, four (12%) preferred use of cryotherapy, and 12% reported using prophylactic scleral buckle.

Conclusions: The majority of the United States. and international pediatric retinal surgeons use laser retinopexy as the primary method of prophylactic treatment. These results may serve as a benchmark for retinal surgeons less familiar with prophylactic treatment approaches. [Ophthalmic Surg Lasers Imaging Retina 2023;54:102-107.].

MeSH terms

  • Child
  • Connective Tissue Diseases* / complications
  • Humans
  • Retinal Detachment* / etiology
  • Retrospective Studies
  • Scleral Buckling / methods
  • Surveys and Questionnaires
  • Treatment Outcome
  • Vitrectomy / adverse effects

Supplementary concepts

  • Stickler syndrome, type 1