Embedding research study recruitment within the patient portal preCheck-in

J Am Med Inform Assoc. 2023 Nov 17;30(12):2028-2035. doi: 10.1093/jamia/ocad164.

Abstract

Objective: Patient portals are increasingly used to recruit patients in research studies, but communication response rates remain low without tactics such as financial incentives or manual outreach. We evaluated a new method of study enrollment by embedding a study information sheet and HIPAA authorization form (HAF) into the patient portal preCheck-in (where patients report basic information like allergies).

Materials and methods: Eligible patients who enrolled received an after-visit patient-reported outcomes survey through the patient portal. No additional recruitment/messaging efforts were made.

Results: A total of 386 of 843 patients completed preCheck-in, 308 of whom signed the HAF and enrolled in the study (37% enrollment rate). Of 93 patients who were eligible to receive the after-visit survey, 45 completed it (48% completion rate).

Conclusion: Enrollment and survey completion rates were higher than what is typically seen with recruitment by patient portal messaging, suggesting that preCheck-in recruitment can enhance research study recruitment and warrants further investigation.

Keywords: HIPAA authorization form; patient portal; preCheck-in; research study recruitment; survey.

Publication types

  • Research Support, N.I.H., Extramural

MeSH terms

  • Health Insurance Portability and Accountability Act
  • Humans
  • Motivation
  • Patient Portals*
  • Patient Reported Outcome Measures
  • Surveys and Questionnaires
  • United States