Background: In recent years, there have been increasing discussions surrounding the appropriate terminology to talk about autism. Initially, this debate revolved around the use of person-first language (e.g., person with autism) versus identity-first language (IFL; e.g., autistic person) but has recently expanded to other autism-related terms (e.g., deficits). However, to date, studies investigating autism-related language preferences have been limited to English-speaking countries, and little is known about preferences in other languages. This study addresses this gap by investigating the language preferences of French-speaking autistic adults.
Methods: Five hundred and forty-one French-speaking autistic adults (formal diagnosis and self-identified) completed an online survey where they selected terms they preferred to use to talk about: (1) the nomenclature of autism; (2) an autistic person; (3) someone's autistic identity; (4) autism more broadly; (5) the abilities of autistic people; and (6) people without a diagnosis of autism. Participants also revealed more about their language preferences via an open-text response.
Results: The most preferred terms were "Autisme," "Personne autiste," "Autiste," "Est Autiste," "Différence neurologique/cérébrale," "Différences," "Difficultés," "Personne neurotypique," "Neurotypique," and "Personne non-autiste." To better understand these preferences, participants' open comments were analyzed, revealing further support for IFL and the social model of disability, and a preference for simple, precise, and validated terms.
Conclusions: These results are consistent with autism terminology preferences in English-speaking countries and provide additional insight into the reasons underlying these preferences. Such work has implications for informing the language of researchers, clinicians, and other professionals in the field, as well as the general public.
Keywords: French; autism; language preferences; neurodiversity.
Community brief: Why is this an important issue?: More and more research is investigating which words should be used to talk about autism. Initially, this discussion revolved around the use of person-first language (e.g., person with autism) versus identity-first language (e.g., autistic person) but has recently expanded to other autism-related terms (e.g., disorder, deficits, high-functioning autism). To date, all the studies on this topic have focused on language preferences in English-speaking countries, and little is known about preferences in other languages.What was the purpose of this study?: We wanted to know whether French-speaking autistic adults would show similar or different autism-related language preferences than English-speaking autistic individuals. We also wanted to know the reasons for these language preferences.What did the researchers do?: In an online survey, we asked 541 French-speaking autistic adults around the world what terms they prefer to use to talk about (1) the nomenclature of autism, (2) an autistic person, (3) someone's autistic identity, (4) autism more broadly, (5) the abilities of autistic people, and (6) someone without an autism diagnosis. Participants also had the opportunity to tell us more about their language preferences in an open comment.What were the results of this study?: The most preferred terms were “Autisme,” “Personne autiste,” “Autiste,” “Est Autiste,” “Différence/neurologique,” “Différences,” “Difficultés,” “Personne neurotypique,” “Neurotypique,” and “Personne non autiste.” To better understand the reasons underlying these preferences, participants' open comments were analyzed, revealing further support for identity-first language and the social model of disability, and a preference for simple, precise, and validated terms.
What do these findings add to what was already known?: We previously knew about language preferences of English-speaking autistic people. This study extends these findings by showing that French-speaking autistic adults also prefer terms that reflect the ideas of identity-first language (e.g., “Est Autiste,” “Personne autiste”) and the social model of disability (e.g., “Différence,” “Handicap”). We also show that these are not the only reasons behind language preferences: Term simplicity, precision, and validity are also important when talking about autism.What are the potential weaknesses in the study?: The reported preferences are not representative of all autistic individuals, as our sample did not include children and adolescents. In addition, we did not make specific adaptations to our questionnaire for non-speaking people or people with intellectual difficulties, so we do not know to what extent their opinions are represented in our data. Further, recruitment was done almost exclusively online, resulting in a self-selecting recruitment method for our sample (i.e., participants who have access to Internet and a computer). Finally, participants who responded to the advertisements and completed the questionnaire are probably interested in the debate regarding language to talk about autism. Therefore, our sample may be more representative of the online autistic, pro-neurodiversity community.How will these findings help autistic adults now or in the future?: This study is the first to look at the language preferences of French-speaking autistic adults. Further, our results have substantial implications for informing the language of researchers, clinicians, and other professionals in the field, as well as the general public.
Copyright 2023, Mary Ann Liebert, Inc., publishers.