Concept Mapping to Define Components for an Occupation-Based Intervention for Parkinson's Disease and Anxiety

J Parkinsons Dis. 2024;14(1):181-195. doi: 10.3233/JPD-230150.

Abstract

Background: Anxiety, a common symptom of Parkinson's disease (PD), results in reduced life quality, reduced participation in meaningful roles and daily activities, and increased health burden. There are no evidence-based interventions to reduce the impact of anxiety in PD on participation.

Objective: This study aimed to identify the key components required for the co-production of an occupation- and community-based intervention for people with PD-related anxiety.

Methods: A participatory mixed-methods research study was conducted using online Group Concept Mapping methodology that included five stages: brainstorming, idea synthesis, sorting activity, rating activity, and analysis. A cluster map, pattern match, and 'go-zone' charts were created through multivariate statistical analysis based on participants' responses. The stages were guided by questions generated by the research team working with stakeholders.

Results: Eighty-three people participated, with 64 taking part in more than one activity. Participants included people with PD (n = 72), care partners (n = 6), and occupational therapists (n = 5). The final map contained 119 statements with eight clusters (stress value 0.252): exercise, lifestyle changes, self-help, coping, access to information, professional help, peers and groups, support from others. Significant agreement existed between the importance and feasibility rating activities (r = -0.07). 'Go-zone' charts highlighted the priority statements for intervention development.

Conclusions: This novel participatory study highlighted priority components that provide starting points for future development of an occupation- and community-based intervention for people with PD-related anxiety.

Keywords: Parkinson’s disease; anxiety; intervention development; occupational therapy.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Anxiety / etiology
  • Anxiety / therapy
  • Humans
  • Occupations
  • Parkinson Disease* / complications
  • Parkinson Disease* / diagnosis
  • Quality of Life
  • Research Design