Measuring Developmental Delays: Comparison of Parent Report and Direct Testing

J Autism Dev Disord. 2024 Feb 26. doi: 10.1007/s10803-024-06292-8. Online ahead of print.

Abstract

Purpose: Developmental assessment is part of a comprehensive autism evaluation. During in-person evaluations, developmental assessment is completed via direct testing by an examiner. In telehealth evaluations, developmental assessment relies on caregiver-report instruments. This study examined correspondence between caregiver report and direct testing of developmental skills.

Methods: Participants were 93 children, aged 18-42 months, undergoing evaluation for possible autism spectrum disorder (ASD). Caregivers were interviewed with the Developmental Profile, 4th edition (DP-4) via telehealth platform and children were tested in person 2-4 weeks later using the Mullen Scales of Early Learning (MSEL).

Results: Correlations between the DP-4 and MSEL were high (ranging from 0.50 to 0.82) across standard scores, age equivalents, and functional categories, as well as across individual subtests and overall composite scores.

Conclusion: The high convergent validity found in this study suggests that the DP-4 provides a suitable proxy for direct developmental testing using the MSEL in the context of telehealth evaluations for ASD in young children, delivering a good estimate of both developmental functioning and presence of delays.

Trial registration: Data were obtained from registered clinical trial NCT05047224, date of registration 2021-09-07.

Keywords: Autism; Convergent validity; Developmental delay; Measurement.

Associated data

  • ClinicalTrials.gov/NCT05047224