Dermatology Life Quality Index survey in patients with Down syndrome and caregivers

Pediatr Dermatol. 2024 Jul-Aug;41(4):671-673. doi: 10.1111/pde.15593. Epub 2024 Mar 18.

Abstract

Down syndrome (DS) is associated with many dermatological conditions, including hidradenitis suppurativa, folliculitis, and alopecia areata. Despite the high incidence of skin conditions in this population, there are no quality of life (QoL) studies in the dermatology literature focused on patients with DS or their caregivers. The frequently used QoL assessment tool, the Dermatology Life Quality Index (DLQI), has yet to be studied in this population. This study addresses these disparities by capturing how various skin conditions affect the QoL of people with DS and their caregivers and assessing the utility of the DLQI.

Keywords: Down syndrome; genetic diseases/mechanisms; quality of life.

MeSH terms

  • Adolescent
  • Adult
  • Caregivers* / psychology
  • Child
  • Child, Preschool
  • Down Syndrome*
  • Female
  • Humans
  • Male
  • Middle Aged
  • Quality of Life*
  • Skin Diseases* / psychology
  • Surveys and Questionnaires
  • Young Adult