Family Resilience Affecting Well-Being of Families With a Child With Profound Intellectual and Multiple Disabilities

Siméon T A Lahaije; Jorien Luijkx; Aly Waninge; Annette A J van der Putten

doi:10.1352/1934-9556-62.2.101

Family Resilience Affecting Well-Being of Families With a Child With Profound Intellectual and Multiple Disabilities

Intellect Dev Disabil. 2024 Apr 1;62(2):101-113. doi: 10.1352/1934-9556-62.2.101.

Authors

Siméon T A Lahaije¹, Jorien Luijkx¹, Aly Waninge¹, Annette A J van der Putten¹

Affiliation

¹ Siméon T. A. Lahaije and Jorien Luijkx, Inclusive and Special Needs Education, Faculty of Behavioural and Social Sciences, University of Groningen, Groningen, The Netherlands; Aly Waninge, Research Group of Healthy Ageing, Allied Health Care and Nursing, Hanze University of Applied Sciences, Groningen, The Netherlands, and Department of Health Psychology, University Medical Center Groningen, Groningen, The Netherlands; and Annette A. J. van der Putten, Inclusive and Special Needs Education, Faculty of Behavioural and Social Sciences, University of Groningen, Groningen, The Netherlands.

PMID: 38545820
DOI: 10.1352/1934-9556-62.2.101

Abstract

Persons with profound intellectual and multiple disabilities (PIMD) have pervasive support needs, which are often managed by their families. By being resilient and positively adapting to this challenge, families may maintain a positive family quality of life (FQOL). We therefore aimed to understand how families with a child with PIMD experience their family resilience, and if and how it affects their FQOL. Participants were 64 parents of a person with PIMD from 44 families. Total family resilience, as well as most subscales received positive scores, and also had a significant positive effect on FQOL. These results provide more insight into the family dynamics of families with a child with PIMD, which should inform policies, and provided services for these families.

Keywords: care load; disability; family resilience; family well-being; profound intellectual and multiple disabilities.

©AAIDD.

MeSH terms

Child
Family
Family Health
Humans
Intellectual Disability*
Quality of Life
Resilience, Psychological*
Social Support