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Review
. 2024 May 23:26:e46108.
doi: 10.2196/46108.

Mobile Health Apps, Family Caregivers, and Care Planning: Scoping Review

Marjorie M Kelley  1 , Tia Powell  2 , Djibril Camara  3 , Neha Shah  4 , Jenna M Norton  4 , Chelsea Deitelzweig  5 , Nivedha Vaidy  4 , Chun-Ju Hsiao  6 , Jing Wang  7 , Arlene S Bierman  5
Affiliations
Review

Mobile Health Apps, Family Caregivers, and Care Planning: Scoping Review

Marjorie M Kelley et al. J Med Internet Res. .

Abstract

Background: People living with multiple chronic conditions (MCCs) face substantial challenges in planning and coordinating increasingly complex care. Family caregivers provide important assistance for people with MCCs but lack sufficient support. Caregiver apps have the potential to help by enhancing care coordination and planning among the health care team, including patients, caregivers, and clinicians.

Objective: We aim to conduct a scoping review to assess the evidence on the development and use of caregiver apps that support care planning and coordination, as well as to identify key factors (ie, needs, barriers, and facilitators) related to their use and desired caregiver app functionalities.

Methods: Papers intersecting 2 major domains, mobile health (mHealth) apps and caregivers, that were in English and published from 2015 to 2021 were included in the initial search from 6 databases and gray literature and ancestry searches. As per JBI (Joanna Briggs Institute) Scoping Review guidelines and PRISMA-ScR (Preferred Reporting Items for Systematic Reviews and Meta-Analyses Extension for Scoping Reviews), 2 authors independently screened full texts with disagreements resolved by a third author. Working in pairs, the authors extracted data using a pilot-tested JBI extraction table and compared results for consensus.

Results: We identified 34 papers representing 25 individual studies, including 18 (53%) pilot and feasibility studies, 13 (38%) qualitative studies, and 2 experimental or quasi-experimental studies. None of the identified studies assessed an intervention of a caregiver app for care planning and coordination for people with MCCs. We identified important caregiver needs in terms of information, support, and care coordination related to both caregiving and self-care. We compiled desired functionalities and features enabling apps to meet the care planning and care coordination needs of caregivers, in particular, the integration of caregiver roles into the electronic health record.

Conclusions: Caregiver needs identified through this study can inform developers and researchers in the design and implementation of mHealth apps that integrate with the electronic health record to link caregivers, patients, and clinicians to support coordinated care for people with MCCs. In addition, this study highlights the need for more rigorous research on the use of mHealth apps to support caregivers in care planning and coordination.

Keywords: application; apps; caregiver; caregivers; carers; chronic condition; clinicians; development; digital health; eHealth; electronic health record; family caregivers; implementation; informal caregivers; mHealth; mHealth applications; mobile health; mobile phone; support; telemedicine.

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Conflict of interest statement

Conflicts of Interest: None declared.

Figures

Figure 1
Figure 1
PRISMA flow diagram (adapted from Tricco et al [22], with permission from PRISMA). PRISMA: Preferred Reporting Items for Systematic Reviews and Meta-Analyses.
See this image and copyright information in PMC

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References

    1. Committee on Family Caregiving for Older Adults. Board on Health Care Services. Health and Medicine Division. National Academies of Sciences, Engineering, and Medicine . In: Families Caring for an Aging America. Schulz R, Eden J, editors. Washington, DC: The National Academies Press; 2016. - PubMed
    1. Caregiving for family and friends—a public health issue. Center for Disease Control and Prevention. 2018. [2024-03-14]. https://www.cdc.gov/aging/caregiving/pdf/caregiver-brief-508.pdf .
    1. Boersma P, Black LI, Ward BW. Prevalence of multiple chronic conditions among US adults, 2018. Prev Chronic Dis. 2020;17:E106. doi: 10.5888/pcd17.200130. https://www.cdc.gov/pcd/issues/2020/20_0130.htm E106 - DOI - PMC - PubMed
    1. Buttorff C, Ruder T, Bauman M. Multiple Chronic Conditions in the United States. Santa Monica, CA: RAND Corporation; 2017.
    1. Gerteis J, Izrael D, Deitz D, LeRoy L, Ricciardi R, Miller T, Basu J. Agency for Healthcare Research and Quality. Capitol Hill, NC: HHS; 2010. Multiple chronic conditions chartbook.