With the best intentions: Implications on self-determination during Covid-19 restrictions

J Appl Res Intellect Disabil. 2024 Jul;37(4):e13257. doi: 10.1111/jar.13257.

Abstract

Background: In times of crisis, the interests of the individual might be sacrificed for the health and safety of others. The aim of this study was to explore the situation under Covid-19 for persons with intellectual disabilities, focusing on implications on the right to self-determination within health protection.

Method: To understand how the relevant legal framework was governed by authorities and service providers during the Covid-19 pandemic, we have performed semi-structured interviews with 19 service providers in municipal home care services.

Results: Many residents were provided adequate and adapted information about Covid-19, but very few were involved in the introduction and implementation of infection control measures.

Conclusions: Our study has revealed how a crisis such as the pandemic not only puts the health of people with intellectual disabilities at risk, but also challenges their right to self-determination.

Keywords: Covid‐19; health protection; human rights; intellectual disabilities; pandemic; self‐determination.

MeSH terms

  • Adult
  • COVID-19* / psychology
  • Female
  • Home Care Services
  • Humans
  • Intellectual Disability* / psychology
  • Male
  • Middle Aged
  • Personal Autonomy*
  • Qualitative Research