Identifying Components of a Person-Centered Augmentative and Alternative Communication Intervention for People With Dementia: Opinions of an International Expert Panel

Am J Speech Lang Pathol. 2024 Jul 3;33(4):2067-2082. doi: 10.1044/2024_AJSLP-23-00317. Epub 2024 Jun 20.

Abstract

Purpose: Despite general agreement on the importance of person-centered care in speech-language pathology, guidelines for developing person-centered interventions for those with dementia are limited. This study aimed to obtain expert opinion on the components of a person-centered augmentative and alternative communication (AAC) intervention for persons with dementia.

Method: A modified electronic Delphi technique was employed in a single round. A purposively sampled panel of experts was invited to provide their opinion on three open-ended questions related to (a) the elements of person-centered care, (b) communication supports, and (c) the interaction outcomes of a person-centered intervention. Thirty-one experts from nine countries participated on the panel. The majority were speech-language pathologists primarily involved in research. Qualitative written data were coded and analyzed using content analysis.

Results: Nine components were identified across the three open-ended questions: (a) the unique characteristics of the person with dementia, (b) working with a person with dementia, (c) preserving personhood, (d) a different view on person-centered care, (e) a range of communication supports, (f) supportive conversational partners, (g) designing communication supports, (h) interaction outcome measure, and (i) meaningful interaction outcomes.

Conclusion: This study identified nine components that are useful in guiding speech-language pathologists in crafting future person-centered AAC interventions for people with dementia.

MeSH terms

  • Attitude of Health Personnel
  • Communication Aids for Disabled
  • Communication Disorders* / rehabilitation
  • Communication Disorders* / therapy
  • Consensus
  • Delphi Technique*
  • Dementia* / psychology
  • Dementia* / therapy
  • Female
  • Humans
  • Male
  • Patient-Centered Care*
  • Speech-Language Pathology* / methods