Challenges in Pediatric Home-Based Hospice and Palliative Care: A Case Series

J Pain Symptom Manage. 2024 Jul 6:S0885-3924(24)00849-2. doi: 10.1016/j.jpainsymman.2024.06.027. Online ahead of print.

Abstract

Pediatric home-based hospice and palliative care is a growing and important sub-field within the larger pediatric palliative care landscape. Despite research demonstrating the clinical and systemic efficacy of pediatric home-based hospice and palliative care, there remain barriers to its optimal development, implementation, and dissemination as well as best clinical practice knowledge gaps. This case series presents specific examples of ubiquitous challenges in pediatric home-based hospice and palliative care in hopes of guiding future research, education, advocacy, and program development efforts.

Keywords: Access to care; Home-based palliative care; Hospice; Pediatrics; Policy; Telehealth.