The Role of Parent Advocacy in Autistic Youths' Self-Determination

Am J Intellect Dev Disabil. 2025 Mar 1;130(2):116-130. doi: 10.1352/1944-7558-130.2.116.

Abstract

Parent advocacy is important for the transition outcomes of autistic youth. However, it is unclear whether parent advocacy efforts support or stifle youths' self-determination. This study examined concurrent (n = 180) and longitudinal (n = 134) associations between parent advocacy and transition-aged autistic youths' self-determination (as reported by parents) and explored whether individual and family characteristics moderated this relationship. Cross-sectional results indicated a positive association between parent advocacy and self-determination for youth with higher adaptive behavior, lower externalizing behavior, and higher parent-child relationship quality. Longitudinal results demonstrated that change in parent advocacy related to change in self-determination for youth with lower adaptive behavior and higher externalizing behavior. Findings suggest that targeting parent advocacy could enhance self-determination skills in autistic youth.

Keywords: autism spectrum disorder; parent advocacy; parent-child relationship; self-determination; transition to adulthood.

MeSH terms

  • Adolescent
  • Adult
  • Autism Spectrum Disorder* / psychology
  • Child
  • Cross-Sectional Studies
  • Female
  • Humans
  • Longitudinal Studies
  • Male
  • Parent-Child Relations*
  • Parents* / psychology
  • Patient Advocacy*
  • Personal Autonomy*
  • Young Adult