This prospective study was conducted in four public tertiary hospitals in Greece. Consecutive cardiac patients (AMI or TAVI) (n=912) were registered and followed up at the point of discharge six months and 12 months after discharge. In case of AMI patients [N=610, mean age=63 (SD=11.8), 78.8% men, 48.8% STEMI], the Heart-QoL score was found 2.33 (SD=0.5) at the point of discharge, 2.61 (SD=0.31) six months after discharge and 2.68 (SD=0.3) twelve months after discharge. In case of TAVI patients [N=302, mean age=81 (SD=5), 50.7% men], the Heart-QoL score was found 1.54 (SD=0.38) at the point of discharge and 2.02 (SD=0.46) six months after discharge. Based on the results of the Danish Heart PREMs instrument (0-3), the majority of patients stated positive experiences during the cycle of care. However, positive experiences regarding the information they received about the psychosocial impact of cardiac issues on their lives (mean and organization (mean 1.03, SD =0.33 for AMI and 1.1, SD=0.35 for TAVI patients), were significantly limited. Results underline the necessity for in depth information of cardiac patients about the psychosocial effects of the disease on their lives and more effective coordination of healthcare.
Keywords: Acute Myocardial Infraction; Heart Patients Quality of Life; Patients’ Reported Experiences; Patients’ Reported Outcomes; Transcatheter Aortic Valve Implantation.