BLUEPRINT PERSONA AND INFORMATION AND COMMUNICATION TECHNOLOGY INTERVENTIONS: ADDRESSING UNMET NEEDS IN BURNING MOUTH SYNDROME CARE

Federica Canfora; Mauro Cataldi; Michele Davide Mignogna; Giulia Ottaviani; Stefania Leuci; Noemi Coppola; Giuseppe Pecoraro; Vincenzo DE Luca; Elena Salvatore; Giovanni Dell'aversana Orabona; Vincenzo Abbate; Guido Iaccarino; Michele Virgolesi; Sara Aprano; Claudia Vetrani; Daniela Lemmo; Massimo Aria; Maddalena Illario; Daniela Adamo

doi:10.1016/j.jebdp.2024.102047

BLUEPRINT PERSONA AND INFORMATION AND COMMUNICATION TECHNOLOGY INTERVENTIONS: ADDRESSING UNMET NEEDS IN BURNING MOUTH SYNDROME CARE

J Evid Based Dent Pract. 2025 Sep;25(3):102047. doi: 10.1016/j.jebdp.2024.102047. Epub 2024 Oct 22.

Authors

Federica Canfora¹, Mauro Cataldi², Michele Davide Mignogna², Giulia Ottaviani³, Stefania Leuci², Noemi Coppola², Giuseppe Pecoraro², Vincenzo DE Luca⁴, Elena Salvatore², Giovanni Dell'aversana Orabona², Vincenzo Abbate², Guido Iaccarino⁵, Michele Virgolesi⁴, Sara Aprano⁵, Claudia Vetrani⁶, Daniela Lemmo⁷, Massimo Aria⁸, Maddalena Illario⁴, Daniela Adamo²

Affiliations

¹ Department of Neuroscience, Reproductive Sciences and Dentistry, University of Naples Federico II, Naples, Italy. Electronic address: federica.canfora@unina.it.
² Department of Neuroscience, Reproductive Sciences and Dentistry, University of Naples Federico II, Naples, Italy.
³ Department of Surgical, Medical and Health Sciences, University of Trieste, Trieste, Italy.
⁴ Department of Public Health, University of Naples Federico II, Naples, Italy.
⁵ Department of Clinical Medicine and Surgery, University "Federico II" of Naples, Naples, Italy.
⁶ Department of Human Sciences, Pegaso Telematic University, Naples, Italy.
⁷ Department of Human Studies, Federico II University of Naples, Naples, Italy.
⁸ Department of Economics and Statistics, University Federico II of Naples, Naples, Italy.

PMID: 40716832
DOI: 10.1016/j.jebdp.2024.102047

Abstract

Objectives: This study aimed to create a Blueprint Persona for Burning Mouth Syndrome (BMS) patients, focusing on Unmet needs that digital solutions can address.

Methods: An interdisciplinary focus group formulated the BMS Blueprint Persona by discussing clinical data and survey results regarding education, informatics skills, and perceived unmet needs, collected from 500 BMS patients between 2022 and 2023.

Results: The BMS Blueprint Persona, named Anna, represents a typical BMS patient profile: a young-old woman with limited computer skills who experiences anxiety, depression, and insomnia, has memory issues leading to medication adherence challenges, is obese due to overeating, and spends much time watching TV at home. Anna's primary concern is receiving inadequate treatment and not achieving disease remission. She also feels misunderstood and lacks family support. This persona reveals several areas where Information and Communication Technology (ICT) interventions, like telemedicine, anxiety and insomnia treatment, drug adherence improvement, and nutritional and lifestyle guidance, could be beneficial. The focus group also outlined the essential features for a prospective mHealth app to meet BMS patients' diverse needs.

Conclusion: The development of the BMS Blueprint Persona successfully identified patient characteristics and unmet needs, offering valuable insights for creating personalized diagnostic-therapeutic pathways and digital health solutions for BMS.

Keywords: Blueprint persona; Burning mouth syndrome; Chronic pain; Digital health; EIP on AHA; Telemedicine; mHealth; telehealth.

MeSH terms

Adult
Aged
Burning Mouth Syndrome* / psychology
Burning Mouth Syndrome* / therapy
Female
Focus Groups
Health Services Needs and Demand*
Humans
Information Technology*
Middle Aged
Telemedicine