Using Human-Centered Design to Build a Peer-Support Network for People Living with Chronic Diseases

Stud Health Technol Inform. 2026 May 21:336:1654-1658. doi: 10.3233/SHTI260506.

Abstract

Background: Mainstream social networks only partly meet the needs of people with chronic conditions, exposing users to fragmented features, limited moderation, and unreliable content.

Objective: To design and prototype a patient-dedicated social network "Dubble" aligned with explicit and implicit user needs.

Methods: We applied user-centered design: interviews (n=5), focus group (n=7), and card sorting (2x4) to derive personas, an experience map, the information architecture, and a Figma prototype.

Results: Three primary needs emerged: emotional support (100%), experience sharing (80%), belonging (60%), plus non-social requirements: confidentiality (40%) and information reliability (100%). Participants were reluctant to use public platforms due to misinformation, fake accounts, and hostile behavior, and wanted relationships that can extend to in-person meetings (60%). The prototype comprises four sections: Home (experience feed), Community (thematic groups and activities), Dubble (one-to-one pairing to mitigate "mass effect"), and Resources (vetted information).

Conclusions: Early findings translate user priorities into features that support sharing, belonging, close-knit peer support, and trustworthy information. A larger evaluation will assess usability, acceptability, and psychosocial impact.

Keywords: Chronic disease; Social networking; User-centered design.

MeSH terms

  • Chronic Disease / psychology
  • Female
  • Focus Groups
  • Humans
  • Male
  • Middle Aged
  • Peer Group*
  • Social Networking*
  • Social Support*
  • User-Centered Design*