The establishment of an HNPCC register

Anticancer Res. 1994 Jul-Aug;14(4B):1647-50.


Guidelines for the establishment of an HNPCC-register are presented. The aims of a register are discussed. Steps in identification of families and persons at risk are suggested, and possible sources of family and pedigree data are mentioned. The role of a register in surveillance, information of family members and medical colleagues, research and international collaboration are discussed.

Publication types

  • Guideline

MeSH terms

  • Colorectal Neoplasms, Hereditary Nonpolyposis*
  • Denmark
  • Humans
  • Registries / standards*