The self-concept of young people with spina bifida: a population-based study

Dev Med Child Neurol. 1994 Mar;36(3):198-215. doi: 10.1111/j.1469-8749.1994.tb11833.x.


Seventy-nine young people with spina bifida were given a psychological, medical, carer and occupational therapy assessment. 79 matched able-bodied young people received the psychosocial interview. The disabled group felt themselves to be less competent in academic, athletic and social aspects of self-concept, less supported by classmates, equally supported by parents and friends and more supported by teachers than the able-bodied group. Disabled subjects did not discount the importance of any area of personal-social functioning, and experienced greater discrepancies between competence and importance in most academic, athletic, social and physical appearance aspects of self-concept. Disabled girls assigned very high importance to physical appearance. Physical appearance was more strongly associated with general self-esteem than any other area of self-concept.

Publication types

  • Comparative Study
  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adolescent
  • Child
  • Disability Evaluation
  • Disabled Persons / psychology
  • Female
  • Humans
  • Hydrocephalus / complications
  • Hydrocephalus / surgery
  • Intelligence Tests
  • Male
  • Personality Inventory
  • Reproducibility of Results
  • Self Concept*
  • Severity of Illness Index
  • Sex Factors
  • Social Support
  • Spinal Dysraphism / complications
  • Spinal Dysraphism / diagnosis
  • Spinal Dysraphism / psychology*
  • Ventriculoperitoneal Shunt