Quality of life assessment in children: a review of conceptual and methodological issues in multidimensional health status measures

J Epidemiol Community Health. 1996 Aug;50(4):391-6. doi: 10.1136/jech.50.4.391.

Abstract

Study objective: To clarify concepts and methodological problems in existing multidimensional health status measures for children.

Design: Thematic review of instruments found by computerised and manual searches, 1979-95.

Subjects: Nine health status instruments.

Main results: Many instruments did not satisfy criteria of being child centered or family focussed; few had sufficient psychometric properties for research or clinical use; underlying conceptual assumptions were rarely explicit.

Conclusions: Quality of life measures should be viewed cautiously. Interdisciplinary discussion is required, as well as discussion with children and parents, to establish constructs that are truly useful.

Publication types

  • Research Support, Non-U.S. Gov't
  • Review

MeSH terms

  • Adolescent
  • Adult
  • Child
  • Child, Preschool
  • Health Status Indicators*
  • Humans
  • Infant
  • Infant, Newborn
  • Pediatrics / methods*
  • Pediatrics / standards
  • Quality of Life*
  • Research Design