Continuity of information for breast cancer patients: the development, use and evaluation of a multidisciplinary care-protocol

Patient Educ Couns. 1997 Feb;30(2):175-86. doi: 10.1016/s0738-3991(96)00950-0.


The multidisciplinary nature of much patient-care may lead to gaps in the continuity of information which they receive, as well as to different care-professionals giving them contradictory information. As a counter-measure, a protocol has been developed which integrates medical, nursing, and a variety of extramural events and activities into a comprehensive description of 15 'moments' in the care of breast cancer surgery-patients. Among innovations, the protocol includes information about psychosocial guidance following diagnosis, and about the discharge procedure and contact with fellow-sufferers. The protocol was implemented in Rotterdam in 1994, in two hospitals and in the community; and evaluated formatively on the basis of reactions from 53 patients and 81 care-professionals. Both groups found its form and content to be successful and informative.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Breast Neoplasms / psychology
  • Breast Neoplasms / therapy*
  • Clinical Protocols
  • Critical Pathways*
  • Decision Trees
  • Female
  • Humans
  • Patient Care Team*
  • Patient Education as Topic / organization & administration*
  • Program Evaluation
  • Social Support