The CHI-RON Study: Using PCORnet® and Patient Engagement Strategies to Improve Diversity Among Research Participants in the Congenital Heart Initiative.
John AS, Leezer S, Rudov L, Jackson JL, Messmer M, Saraf S, Mehta R, Papneja S, Saidi AS, Marlin A, Hile D, Agarwal A, Lewis MJ, Kanter RJ, Sandhu S, Young T, Jacobsen R, Ruckdeschel ES, Lubert AM, Singh HS, Zaidi AN, Halpern DG, Krasuski RA, Asfaw K, Marsolo K, Phillippi R, Owolabi A, Carton T.
John AS, et al.
Med Care. 2026 Feb 1;64(2S Suppl 3):S196-S204. doi: 10.1097/MLR.0000000000002222. Epub 2026 Jan 8.
Med Care. 2026.
PMID: 41504747
Free PMC article.
CHI-RON recruitment methodologies have increased representation when compared with self-enrolled CHI participants in terms of ethnicity (10.9% vs. 7.4% Hispanic, P<0.001), race (5.4% vs. 2.6%, Black/African American, P<0.001), sex (41% vs. 28% male, P<0.001), younger age …
CHI-RON recruitment methodologies have increased representation when compared with self-enrolled CHI participants in terms of ethnicity (10. …