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Page 1
A core outcome set for best care for the dying person: Results of an international Delphi study and consensus meeting.
Zambrano SC, Egloff M, Gonzalez-Jaramillo V, Christen-Cevallos Rosero A, Allan S, Barnestein-Fonseca P, Ellershaw J, Fischer C, Haugen DF, Lunder U, Martin-Rosello M, Mason S, Rasmussen B, Sigurðardóttir V, Simon J, Tripodoro VA, van der Heide A, van Zuylen L, Voltz R, Fürst CJ, Williamson PR, Eychmüller S; iLIVE. Zambrano SC, et al. Palliat Med. 2025 Jan;39(1):163-175. doi: 10.1177/02692163241300867. Epub 2024 Dec 4. Palliat Med. 2025. PMID: 39629728 Free PMC article.
'Someone must do it': multiple views on family's role in end-of-life care - an international qualitative study.
Tripodoro VA, Veloso VI, Víbora Martín E, Kodba-Čeh H, Bakan M, Rasmussen BH, Zambrano SC, Joshi M, Hálfdánardóttir SÍ, Ásgeirsdóttir GH, Romarheim E, Haugen DF, McGlinchey T, Yildiz B, Barnestein-Fonseca P, Goossensen A, Lunder U, van der Heide A. Tripodoro VA, et al. Palliat Care Soc Pract. 2024 Aug 1;18:26323524241260425. doi: 10.1177/26323524241260425. eCollection 2024. Palliat Care Soc Pract. 2024. PMID: 39099623 Free PMC article.
Barriers and drivers of public engagement in palliative care, Scoping review.
Barnestein-Fonseca P, Nebro-Gil A, Aguiar-Leiva VP, Víbora-Martín E, Ruiz-Torreras I, Martín-Rosello ML; on behalf iLIVE Group. Barnestein-Fonseca P, et al. BMC Palliat Care. 2024 May 7;23(1):117. doi: 10.1186/s12904-024-01424-4. BMC Palliat Care. 2024. PMID: 38711035 Free PMC article.
Facilitators and barriers of implementing end-of-life care volunteering in a hospital in five European countries: the iLIVE study.
Yildiz B, van der Heide A, Bakan M, Iversen GS, Haugen DF, McGlinchey T, Smeding R, Ellershaw J, Fischer C, Simon J, Vibora-Martin E, Ruiz-Torreras I, Goossensen A; iLIVE consortium. Yildiz B, et al. BMC Palliat Care. 2024 Apr 2;23(1):88. doi: 10.1186/s12904-024-01423-5. BMC Palliat Care. 2024. PMID: 38561727 Free PMC article.
What do bereaved relatives of cancer patients dying in hospital want to tell us? Analysis of free-text comments from the International Care of the Dying Evaluation (i-CODE) survey: a mixed methods approach.
Gerlach C, Baus M, Gianicolo E, Bayer O, Haugen DF, Weber M, Mayland CR; ERANet-LAC CODE Core scientific group. Gerlach C, et al. Support Care Cancer. 2022 Dec 23;31(1):81. doi: 10.1007/s00520-022-07490-9. Support Care Cancer. 2022. PMID: 36562882 Free PMC article.
Hospital care for the dying patient with cancer: does an advance care planning invitation influence bereaved relatives' experiences? A two country survey.
Hjorth NE, Hufthammer KO, Sigurdardottir K, Tripodoro VA, Goldraij G, Kvikstad A, Haugen DF; ERANet-LAC CODE project group; Core scientific group. Hjorth NE, et al. BMJ Support Palliat Care. 2024 Jan 8;13(e3):e1038-e1047. doi: 10.1136/bmjspcare-2021-003116. BMJ Support Palliat Care. 2024. PMID: 34848559 Free PMC article.
ILIVE Project Volunteer study. Developing international consensus for a European Core Curriculum for hospital end-of-life-care volunteer services, to train volunteers to support patients in the last weeks of life: A Delphi study.
McGlinchey T, Mason SR, Smeding R, Goosensen A, Ruiz-Torreras I, Haugen DF, Bakan M, Ellershaw JE. McGlinchey T, et al. Palliat Med. 2022 Apr;36(4):652-670. doi: 10.1177/02692163211045305. Epub 2021 Oct 20. Palliat Med. 2022. PMID: 34666562 Free PMC article. Review.
Good Quality Care for Cancer Patients Dying in Hospitals, but Information Needs Unmet: Bereaved Relatives' Survey within Seven Countries.
Haugen DF, Hufthammer KO, Gerlach C, Sigurdardottir K, Hansen MIT, Ting G, Tripodoro VA, Goldraij G, Yanneo EG, Leppert W, Wolszczak K, Zambon L, Passarini JN, Saad IAB, Weber M, Ellershaw J, Mayland CR; ERANet-LAC CODE Project Group. Haugen DF, et al. Oncologist. 2021 Jul;26(7):e1273-e1284. doi: 10.1002/onco.13837. Epub 2021 Jun 17. Oncologist. 2021. PMID: 34060705 Free PMC article.
Development of an international Core Outcome Set (COS) for best care for the dying person: study protocol.
Zambrano SC, Haugen DF, van der Heide A, Tripodoro VA, Ellershaw J, Fürst CJ, Voltz R, Mason S, Daud ML, De Simone G, Kremeike K, Halfdanardottir SI, Sigurdardottir V, Johnson J, Allan S, Hafeez H, Simões C, Sigurdardottir KR, Rasmussen BH, Williamson P, Eychmüller S; iLIVE consortium. Zambrano SC, et al. BMC Palliat Care. 2020 Nov 30;19(1):184. doi: 10.1186/s12904-020-00654-6. BMC Palliat Care. 2020. PMID: 33256786 Free PMC article.
Assessing quality of care for the dying from the bereaved relatives' perspective: Using pre-testing survey methods across seven countries to develop an international outcome measure.
Mayland CR, Gerlach C, Sigurdardottir K, Hansen MIT, Leppert W, Stachowiak A, Krajewska M, Garcia-Yanneo E, Tripodoro VA, Goldraij G, Weber M, Zambon L, Passarini JN, Saad IB, Ellershaw J, Haugen DF. Mayland CR, et al. Palliat Med. 2019 Mar;33(3):357-368. doi: 10.1177/0269216318818299. Epub 2019 Jan 10. Palliat Med. 2019. PMID: 30628867 Free PMC article.
Integration of oncology and palliative care: a Lancet Oncology Commission.
Kaasa S, Loge JH, Aapro M, Albreht T, Anderson R, Bruera E, Brunelli C, Caraceni A, Cervantes A, Currow DC, Deliens L, Fallon M, Gómez-Batiste X, Grotmol KS, Hannon B, Haugen DF, Higginson IJ, Hjermstad MJ, Hui D, Jordan K, Kurita GP, Larkin PJ, Miccinesi G, Nauck F, Pribakovic R, Rodin G, Sjøgren P, Stone P, Zimmermann C, Lundeby T. Kaasa S, et al. Lancet Oncol. 2018 Nov;19(11):e588-e653. doi: 10.1016/S1470-2045(18)30415-7. Epub 2018 Oct 18. Lancet Oncol. 2018. PMID: 30344075 Free article. Review.
Funding models in palliative care: Lessons from international experience.
Groeneveld EI, Cassel JB, Bausewein C, Csikós Á, Krajnik M, Ryan K, Haugen DF, Eychmueller S, Gudat Keller H, Allan S, Hasselaar J, García-Baquero Merino T, Swetenham K, Piper K, Fürst CJ, Murtagh FE. Groeneveld EI, et al. Palliat Med. 2017 Apr;31(4):296-305. doi: 10.1177/0269216316689015. Epub 2017 Feb 3. Palliat Med. 2017. PMID: 28156188 Free PMC article. Review.
Characteristics of the case mix, organisation and delivery in cancer palliative care: a challenge for good-quality research.
Hjermstad MJ, Aass N, Aielli F, Bennett M, Brunelli C, Caraceni A, Cavanna L, Fassbender K, Feio M, Haugen DF, Jakobsen G, Laird B, Løhre ET, Martinez M, Nabal M, Noguera-Tejedor A, Pardon K, Pigni A, Piva L, Porta-Sales J, Rizzi F, Rondini E, Sjøgren P, Strasser F, Turriziani A, Kaasa S; European Palliative Care Cancer Symptom study (EPCCS). Hjermstad MJ, et al. BMJ Support Palliat Care. 2018 Dec;8(4):456-467. doi: 10.1136/bmjspcare-2015-000997. Epub 2016 May 31. BMJ Support Palliat Care. 2018. PMID: 27246166 Free article.
Drug utilization and medication costs at the end of life.
Pont L, Jansen K, Schaufel MA, Haugen DF, Ruths S. Pont L, et al. Expert Rev Pharmacoecon Outcomes Res. 2016;16(2):237-43. doi: 10.1586/14737167.2016.1158106. Expert Rev Pharmacoecon Outcomes Res. 2016. PMID: 26919437 Review.
The Edmonton Classification System for Cancer Pain: comparison of pain classification features and pain intensity across diverse palliative care settings in eight countries.
Nekolaichuk CL, Fainsinger RL, Aass N, Hjermstad MJ, Knudsen AK, Klepstad P, Currow DC, Kaasa S; European Palliative Care Research Collaborative (EPCRC). Nekolaichuk CL, et al. J Palliat Med. 2013 May;16(5):516-23. doi: 10.1089/jpm.2012.0390. Epub 2013 Apr 24. J Palliat Med. 2013. PMID: 23614710
To be involved or not to be involved: a survey of public preferences for self-involvement in decision-making involving mental capacity (competency) within Europe.
Daveson BA, Bausewein C, Murtagh FE, Calanzani N, Higginson IJ, Harding R, Cohen J, Simon ST, Deliens L, Bechinger-English D, Hall S, Koffman J, Ferreira PL, Toscani F, Gysels M, Ceulemans L, Haugen DF, Gomes B; PRISMA. Daveson BA, et al. Palliat Med. 2013 May;27(5):418-27. doi: 10.1177/0269216312471883. Epub 2013 Feb 20. Palliat Med. 2013. PMID: 23426845
Computer-based symptom assessment is feasible in patients with advanced cancer: results from an international multicenter study, the EPCRC-CSA.
Hjermstad MJ, Lie HC, Caraceni A, Currow DC, Fainsinger RL, Gundersen OE, Haugen DF, Heitzer E, Radbruch L, Stone PC, Strasser F, Kaasa S, Loge JH; European Palliative Care Research Collaborative (EPCRC). Hjermstad MJ, et al. J Pain Symptom Manage. 2012 Nov;44(5):639-54. doi: 10.1016/j.jpainsymman.2011.10.025. Epub 2012 Jul 13. J Pain Symptom Manage. 2012. PMID: 22795905 Free article.
Culture is a priority for research in end-of-life care in Europe: a research agenda.
Gysels M, Evans N, Meñaca A, Andrew EV, Bausewein C, Gastmans C, Gómez-Batiste X, Gunaratnam Y, Husebø S, Toscani F, Higginson IJ, Harding R, Pool R; Project PRISMA. Gysels M, et al. J Pain Symptom Manage. 2012 Aug;44(2):285-94. doi: 10.1016/j.jpainsymman.2011.09.013. Epub 2012 Jun 5. J Pain Symptom Manage. 2012. PMID: 22672921 Free article.
Enhancing patient-reported outcome measurement in research and practice of palliative and end-of-life care.
Simon ST, Higginson IJ, Harding R, Daveson BA, Gysels M, Deliens L, Echteld MA, Radbruch L, Toscani F, Krzyzanowski DM, Costantini M, Downing J, Ferreira PL, Benalia A, Bausewein C; PRISMA. Simon ST, et al. Support Care Cancer. 2012 Jul;20(7):1573-8. doi: 10.1007/s00520-012-1436-5. Epub 2012 Mar 7. Support Care Cancer. 2012. PMID: 22391595 Free article.
Preferences for place of death if faced with advanced cancer: a population survey in England, Flanders, Germany, Italy, the Netherlands, Portugal and Spain.
Gomes B, Higginson IJ, Calanzani N, Cohen J, Deliens L, Daveson BA, Bechinger-English D, Bausewein C, Ferreira PL, Toscani F, Meñaca A, Gysels M, Ceulemans L, Simon ST, Pasman HRW, Albers G, Hall S, Murtagh FEM, Haugen DF, Downing J, Koffman J, Pettenati F, Finetti S, Antunes B, Harding R; PRISMA. Gomes B, et al. Ann Oncol. 2012 Aug;23(8):2006-2015. doi: 10.1093/annonc/mdr602. Epub 2012 Feb 16. Ann Oncol. 2012. PMID: 22345118 Free article.
Use of opioid analgesics in the treatment of cancer pain: evidence-based recommendations from the EAPC.
Caraceni A, Hanks G, Kaasa S, Bennett MI, Brunelli C, Cherny N, Dale O, De Conno F, Fallon M, Hanna M, Haugen DF, Juhl G, King S, Klepstad P, Laugsand EA, Maltoni M, Mercadante S, Nabal M, Pigni A, Radbruch L, Reid C, Sjogren P, Stone PC, Tassinari D, Zeppetella G; European Palliative Care Research Collaborative (EPCRC); European Association for Palliative Care (EAPC). Caraceni A, et al. Lancet Oncol. 2012 Feb;13(2):e58-68. doi: 10.1016/S1470-2045(12)70040-2. Lancet Oncol. 2012. PMID: 22300860 Review.
Symptom assessment in palliative medicine.
Bergh I, Aass N, Haugen DF, Kaasa S, Hjermstad MJ. Bergh I, et al. Tidsskr Nor Laegeforen. 2012 Jan 10;132(1):18-9. doi: 10.4045/tidsskr.11.1083. Tidsskr Nor Laegeforen. 2012. PMID: 22240824 Free article. English, Norwegian. No abstract available.
Physical exercise for cancer patients with advanced disease: a randomized controlled trial.
Oldervoll LM, Loge JH, Lydersen S, Paltiel H, Asp MB, Nygaard UV, Oredalen E, Frantzen TL, Lesteberg I, Amundsen L, Hjermstad MJ, Haugen DF, Paulsen Ø, Kaasa S. Oldervoll LM, et al. Oncologist. 2011;16(11):1649-57. doi: 10.1634/theoncologist.2011-0133. Epub 2011 Sep 26. Oncologist. 2011. PMID: 21948693 Free PMC article. Clinical Trial.
Studies comparing Numerical Rating Scales, Verbal Rating Scales, and Visual Analogue Scales for assessment of pain intensity in adults: a systematic literature review.
Hjermstad MJ, Fayers PM, Haugen DF, Caraceni A, Hanks GW, Loge JH, Fainsinger R, Aass N, Kaasa S; European Palliative Care Research Collaborative (EPCRC). Hjermstad MJ, et al. J Pain Symptom Manage. 2011 Jun;41(6):1073-93. doi: 10.1016/j.jpainsymman.2010.08.016. J Pain Symptom Manage. 2011. PMID: 21621130 Free article. Review.
A pan-European survey of research in end-of-life cancer care.
Sigurdardottir KR, Haugen DF, Bausewein C, Higginson IJ, Harding R, Rosland JH, Kaasa S; Project PRISMA. Sigurdardottir KR, et al. Support Care Cancer. 2012 Jan;20(1):39-48. doi: 10.1007/s00520-010-1048-x. Epub 2010 Nov 30. Support Care Cancer. 2012. PMID: 21116654 Free PMC article.
Which variables are associated with pain intensity and treatment response in advanced cancer patients?--Implications for a future classification system for cancer pain.
Knudsen AK, Brunelli C, Kaasa S, Apolone G, Corli O, Montanari M, Fainsinger R, Aass N, Fayers P, Caraceni A, Klepstad P; European Palliative Care Research Collaborative; European Pharmacogenetic Study. Knudsen AK, et al. Eur J Pain. 2011 Mar;15(3):320-7. doi: 10.1016/j.ejpain.2010.08.001. Epub 2010 Sep 6. Eur J Pain. 2011. PMID: 20822941
The detection of depression in palliative care.
Rayner L, Loge JH, Wasteson E, Higginson IJ; EPCRC, European Palliative Care Research Collaborative. Rayner L, et al. Curr Opin Support Palliat Care. 2009 Mar;3(1):55-60. doi: 10.1097/SPC.0b013e328326b59b. Curr Opin Support Palliat Care. 2009. PMID: 19365162 Review.
Pain assessment tools in palliative care: an urgent need for consensus.
Hjermstad MJ, Gibbins J, Haugen DF, Caraceni A, Loge JH, Kaasa S; EPCRC, European Palliative Care Research Collaborative. Hjermstad MJ, et al. Palliat Med. 2008 Dec;22(8):895-903. doi: 10.1177/0269216308095701. Epub 2008 Sep 17. Palliat Med. 2008. PMID: 18799513 Review.
[Cooperation about palliation].
Haugen DF. Haugen DF. Tidsskr Nor Laegeforen. 2007 Sep 6;127(17):2217. Tidsskr Nor Laegeforen. 2007. PMID: 17828312 Free article. Norwegian. No abstract available.
Palliative care in Norway: a national public health model.
Kaasa S, Jordhøy MS, Haugen DF. Kaasa S, et al. J Pain Symptom Manage. 2007 May;33(5):599-604. doi: 10.1016/j.jpainsymman.2007.02.011. J Pain Symptom Manage. 2007. PMID: 17482054 Free article. Review.
[Organisation of palliative care in and outside hospital].
Haugen DF, Jordhøy MS, Engstrand P, Hessling SE, Garåsen H. Haugen DF, et al. Tidsskr Nor Laegeforen. 2006 Jan 26;126(3):329-32. Tidsskr Nor Laegeforen. 2006. PMID: 16440042 Free article. Norwegian.
[The specialist field of palliative medicine].
Kaasa S, Haugen DF. Kaasa S, et al. Tidsskr Nor Laegeforen. 2006 Jan 26;126(3):326-8. Tidsskr Nor Laegeforen. 2006. PMID: 16440041 Free article. Norwegian.
[Palliative medicine].
Kaasa S, Haugen DF. Kaasa S, et al. Tidsskr Nor Laegeforen. 2006 Jan 26;126(3):294. Tidsskr Nor Laegeforen. 2006. PMID: 16440030 Free article. Norwegian. No abstract available.