Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.


The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation

Search Page


My NCBI Filters

Text availability

Article attribute

Article type

Publication date

Search Results

286 results

Filters applied: . Clear all Results are displayed in a computed author sort order. Results by year timeline is unavailable
Page 1
Vaso-occlusive crises and costs of sickle cell disease in patients with commercial, Medicaid, and Medicare insurance - the perspective of private and public payers.
Shah NR, Bhor M, Latremouille-Viau D, Kumar Sharma V, Puckrein GA, Gagnon-Sanschagrin P, Khare A, Kumar Singh M, Serra E, Davidson M, Xu L, Guerin A. Shah NR, et al. J Med Econ. 2020 Nov;23(11):1345-1355. doi: 10.1080/13696998.2020.1813144. Epub 2020 Sep 9. J Med Econ. 2020. PMID: 32815766 Free article.
"Pain is Subjective": A Mixed-Methods Study of Provider Attitudes and Practices Regarding Pain Management in Sickle Cell Disease Across Three Countries.
Stewart KA, Parshad-Asnani M, Wonkam A, Bollinger J, Ngo Bitoungui V, Wonkam-Tingang E, Powell J, Desronvil K, Benson KRK, Clark A, Katz M, Martin B, Peterseim C, Williams C, Young N, Shah N, Tanabe P, Babyak M, Royal CDM. Stewart KA, et al. J Pain Symptom Manage. 2021 Mar;61(3):474-487. doi: 10.1016/j.jpainsymman.2020.08.029. Epub 2020 Sep 1. J Pain Symptom Manage. 2021. PMID: 32889040 Free article.
Effective Recruitment Strategies for a Sickle Cell Patient Registry Across Sites from the Sickle Cell Disease Implementation Consortium (SCDIC).
Masese RV, DeMartino T, Bonnabeau E, Burns EN, Preiss L, Varughese T, Nocek JM, Lasley P, Chen Y, Davila C, Nwosu C, Scott S, Bowman L, Gordon L, Clesca C, Peters-Lawrence M, Melvin C, Shah N, Tanabe P; SCD Implementation Consortium. Masese RV, et al. J Immigr Minor Health. 2021 Aug;23(4):725-732. doi: 10.1007/s10903-020-01102-6. Epub 2020 Oct 9. J Immigr Minor Health. 2021. PMID: 33034793 Free PMC article.
Development of a Severity Classification System for Sickle Cell Disease.
Shah N, Beenhouwer D, Broder MS, Bronte-Hall L, De Castro LM, Gibbs SN, Gordeuk VR, Kanter J, Klings ES, Lipato T, Manwani D, Scullin B, Yermilov I, Smith WR. Shah N, et al. Clinicoecon Outcomes Res. 2020 Oct 28;12:625-633. doi: 10.2147/CEOR.S276121. eCollection 2020. Clinicoecon Outcomes Res. 2020. PMID: 33149635 Free PMC article.
Dissemination of Evidence-Based Recommendations for Sickle Cell Disease to Primary Care and Emergency Department Providers in North Carolina: A Cost Benefit Analysis.
Tanabe P, Blewer AL, Bonnabeau E, Bosworth HB, Clayton DH, Crego N, Earls MF, Eason K, Forlines G, Rains G, Young M, Shah N. Tanabe P, et al. J Health Econ Outcomes Res. 2021 Apr 1;8(1):18-28. doi: 10.36469/jheor.2021.21535. J Health Econ Outcomes Res. 2021. PMID: 33829067 Free PMC article.
Effect of Poloxamer 188 vs Placebo on Painful Vaso-Occlusive Episodes in Children and Adults With Sickle Cell Disease: A Randomized Clinical Trial.
Casella JF, Barton BA, Kanter J, Black LV, Majumdar S, Inati A, Wali Y, Drachtman RA, Abboud MR, Kilinc Y, Fuh BR, Al-Khabori MK, Takemoto CM, Salman E, Sarnaik SA, Shah N, Morris CR, Keates-Baleeiro J, Raj A, Alvarez OA, Hsu LL, Thompson AA, Sisler IY, Pace BS, Noronha SA, Lasky JL 3rd, de Julian EC, Godder K, Thornburg CD, Kamberos NL, Nuss R, Marsh AM, Owen WC, Schaefer A, Tebbi CK, Chantrain CF, Cohen DE, Karakas Z, Piccone CM, George A, Fixler JM, Singleton TC, Moulton T, Quinn CT, de Castro Lobo CL, Almomen AM, Goyal-Khemka M, Maes P, Emanuele M, Gorney RT, Padgett CS, Parsley E, Kronsberg SS, Kato GJ, Gladwin MT. Casella JF, et al. JAMA. 2021 Apr 20;325(15):1513-1523. doi: 10.1001/jama.2021.3414. JAMA. 2021. PMID: 33877274 Free PMC article. Clinical Trial.
Sex-based differences in the manifestations and complications of sickle cell disease: Report from the Sickle Cell Disease Implementation Consortium.
Masese RV, Bulgin D, Knisely MR, Preiss L, Stevenson E, Hankins JS, Treadwell MJ, King AA, Gordeuk VR, Kanter J, Gibson R, Glassberg JA, Tanabe P, Shah N; Sickle Cell Disease Implementation Consortium. Masese RV, et al. PLoS One. 2021 Oct 29;16(10):e0258638. doi: 10.1371/journal.pone.0258638. eCollection 2021. PLoS One. 2021. PMID: 34714833 Free PMC article.
Perspectives of individuals with sickle cell disease on barriers to care.
Phillips S, Chen Y, Masese R, Noisette L, Jordan K, Jacobs S, Hsu LL, Melvin CL, Treadwell M, Shah N, Tanabe P, Kanter J. Phillips S, et al. PLoS One. 2022 Mar 23;17(3):e0265342. doi: 10.1371/journal.pone.0265342. eCollection 2022. PLoS One. 2022. PMID: 35320302 Free PMC article.
An evaluation of patient-reported outcomes in sickle cell disease within a conceptual model.
Treadwell MJ, Mushiana S, Badawy SM, Preiss L, King AA, Kroner B, Chen Y, Glassberg J, Gordeuk V, Shah N, Snyder A, Wun T; Sickle Cell Disease Implementation Consortium (SCDIC). Treadwell MJ, et al. Qual Life Res. 2022 Sep;31(9):2681-2694. doi: 10.1007/s11136-022-03132-z. Epub 2022 Apr 21. Qual Life Res. 2022. PMID: 35445915 Free PMC article.
Patient-reported outcomes in sickle cell disease and association with clinical and psychosocial factors: Report from the sickle cell disease implementation consortium.
Knisely MR, Pugh N, Kroner B, Masese R, Gordeuk V, King AA, Smith SM, Gurney JG, Adams R, Wun T, Snyder A, Glassberg J, Shah N, Treadwell M; Sickle Cell Disease Implementation Consortium. Knisely MR, et al. Am J Hematol. 2020 Sep;95(9):1066-1074. doi: 10.1002/ajh.25880. Epub 2020 Jun 29. Am J Hematol. 2020. PMID: 32449965 Free PMC article. Clinical Trial.
Publication of data collection forms from NHLBI funded sickle cell disease implementation consortium (SCDIC) registry.
Glassberg JA, Linton EA, Burson K, Hendershot T, Telfair J, Kanter J, Gordeuk VR, King AA, Melvin CL, Shah N, Hankins JS, Epié AY, Richardson LD; Sickle Cell Disease Implementation Consortium. Glassberg JA, et al. Orphanet J Rare Dis. 2020 Jul 7;15(1):178. doi: 10.1186/s13023-020-01457-x. Orphanet J Rare Dis. 2020. PMID: 32635939 Free PMC article.
Impact of the COVID-19 Pandemic on the Implementation of Mobile Health to Improve the Uptake of Hydroxyurea in Patients With Sickle Cell Disease: Mixed Methods Study.
Badawy SM, DiMartino L, Brambilla D, Klesges L, Baumann A, Burns E, DeMartino T, Jacobs S, Khan H, Nwosu C, Shah N, Hankins JS; Sickle Cell Disease Implementation Consortium. Badawy SM, et al. JMIR Form Res. 2022 Oct 14;6(10):e41415. doi: 10.2196/41415. JMIR Form Res. 2022. PMID: 36240004 Free PMC article.
The sickle cell disease implementation consortium: Translating evidence-based guidelines into practice for sickle cell disease.
DiMartino LD, Baumann AA, Hsu LL, Kanter J, Gordeuk VR, Glassberg J, Treadwell MJ, Melvin CL, Telfair J, Klesges LM, King A, Wun T, Shah N, Gibson RW, Hankins JS; Sickle Cell Disease Implementation Consortium. DiMartino LD, et al. Am J Hematol. 2018 Dec;93(12):E391-E395. doi: 10.1002/ajh.25282. Epub 2018 Oct 17. Am J Hematol. 2018. PMID: 30203558 Free PMC article. No abstract available.
Measuring Pain in Sickle Cell Disease using Clinical Text.
Alambo A, Andrew R, Gollarahalli S, Vaughn J, Banerjee T, Thirunarayan K, Abrams D, Shah N. Alambo A, et al. Annu Int Conf IEEE Eng Med Biol Soc. 2020 Jul;2020:5838-5841. doi: 10.1109/EMBC44109.2020.9175599. Annu Int Conf IEEE Eng Med Biol Soc. 2020. PMID: 33019301 Free PMC article.
286 results