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Considerations for patient and public involvement and engagement in health research.
Aiyegbusi OL, McMullan C, Hughes SE, Turner GM, Subramanian A, Hotham R, Davies EH, Frost C, Alder Y, Agyen L, Buckland L, Camaradou J, Chong A, Jeyes F, Kumar S, Matthews KL, Moore P, Ormerod J, Price G, Saint-Cricq M, Stanton D, Walker A, Haroon S, Denniston AK, Calvert MJ; TLC Study Group. Aiyegbusi OL, et al. Among authors: agyen l. Nat Med. 2023 Aug;29(8):1922-1929. doi: 10.1038/s41591-023-02445-x. Epub 2023 Jul 20. Nat Med. 2023. PMID: 37474660 Review.
Therapies for Long COVID in non-hospitalised individuals: from symptoms, patient-reported outcomes and immunology to targeted therapies (The TLC Study).
Haroon S, Nirantharakumar K, Hughes SE, Subramanian A, Aiyegbusi OL, Davies EH, Myles P, Williams T, Turner G, Chandan JS, McMullan C, Lord J, Wraith DC, McGee K, Denniston AK, Taverner T, Jackson LJ, Sapey E, Gkoutos G, Gokhale K, Leggett E, Iles C, Frost C, McNamara G, Bamford A, Marshall T, Zemedikun DT, Price G, Marwaha S, Simms-Williams N, Brown K, Walker A, Jones K, Matthews K, Camaradou J, Saint-Cricq M, Kumar S, Alder Y, Stanton DE, Agyen L, Baber M, Blaize H, Calvert M. Haroon S, et al. Among authors: agyen l. BMJ Open. 2022 Apr 26;12(4):e060413. doi: 10.1136/bmjopen-2021-060413. BMJ Open. 2022. PMID: 35473737 Free PMC article.
Long COVID guidelines need to reflect lived experience.
Gorna R, MacDermott N, Rayner C, O'Hara M, Evans S, Agyen L, Nutland W, Rogers N, Hastie C. Gorna R, et al. Among authors: agyen l. Lancet. 2021 Feb 6;397(10273):455-457. doi: 10.1016/S0140-6736(20)32705-7. Epub 2020 Dec 23. Lancet. 2021. PMID: 33357467 Free PMC article. No abstract available.