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Assessing the impact of an online dementia awareness initiative co-created with and for English, Arabic and Vietnamese speaking communities: A case study.
Ali Y, Caballero GE, Shatnawi E, Dadich A, Steiner-Lim GZ, Alliance CBD, DiGiacomo M, Karamacoska D. Ali Y, et al. Health Expect. 2024 Apr;27(2):e14026. doi: 10.1111/hex.14026. Health Expect. 2024. PMID: 38618991 Free PMC article.
CONCLUSIONS: An online multilingual dementia information session can be an effective way to improve dementia literacy and advocate for change in multicultural communities. PATIENT OR PUBLIC CONTRIBUTION: English, Arabic and Vietnamese speaking members of the Canterbury Ban …
CONCLUSIONS: An online multilingual dementia information session can be an effective way to improve dementia literacy and advocate for chang …
Measures of Awareness in Alzheimer's Disease and Clinical Differences Between Groups with Preserved, Impaired, and Absent Awareness.
Lacerda IB, Baptista MAT, Belfort T, Mograbi D, Dourado MCN. Lacerda IB, et al. J Alzheimers Dis Rep. 2024 Mar 15;8(1):399-410. doi: 10.3233/ADR-230090. eCollection 2024. J Alzheimers Dis Rep. 2024. PMID: 38549632 Free PMC article.
METHODS: We cross-sectionally assessed 134 PwAD and their caregivers. Individuals' level of awareness was assessed with two methods: clinicians' ratings identified three groups (preserved awareness, impaired awareness, and absent awareness), while discrepancy assessment id …
METHODS: We cross-sectionally assessed 134 PwAD and their caregivers. Individuals' level of awareness was assessed with two methods: …
Differences in the treatment needs of patients with dementia with Lewy bodies and their caregivers and differences in their physicians' awareness of those treatment needs according to the clinical department visited by the patients: a subanalysis of an observational survey study.
Ikeda M, Toya S, Manabe Y, Yamakage H, Hashimoto M. Ikeda M, et al. Alzheimers Res Ther. 2024 Mar 14;16(1):59. doi: 10.1186/s13195-024-01419-6. Alzheimers Res Ther. 2024. PMID: 38481342 Free PMC article.
The treatment needs of patients and caregivers were defined as "the symptom that causes them the most distress", and the frequency of each answer was tabulated. RESULTS: This subanalysis included 134, 65, and 49 patient-caregiver pairs in the P-, G-, a …
The treatment needs of patients and caregivers were defined as "the symptom that causes them the most distress", and the frequ …
Increasing awareness for dementia risk reduction through a public awareness campaign in Denmark: A pre-post study.
Paauw D, Heger I, Bjerre JF, Ringgaard MF, Stensgård V, Horstkötter D, Köhler S, Deckers K. Paauw D, et al. Prev Med. 2024 Feb;179:107848. doi: 10.1016/j.ypmed.2024.107848. Epub 2024 Jan 10. Prev Med. 2024. PMID: 38215992 Free article.
OBJECTIVE: It is estimated that about 40% of all dementia cases are potentially attributable to modifiable risk factors, but awareness of this is relatively lacking. METHODS: An 18-months nation-wide public awareness campaign on dementia risk reduction was rolled out in De …
OBJECTIVE: It is estimated that about 40% of all dementia cases are potentially attributable to modifiable risk factors, but awareness of th …
Dyadic influences on awareness of condition in people with dementia: findings from the IDEAL cohort.
Alexander CM, Martyr A, Gamble LD, Quinn C, Pentecost C, Morris RG, Clare L. Alexander CM, et al. Front Aging Neurosci. 2023 Dec 11;15:1277336. doi: 10.3389/fnagi.2023.1277336. eCollection 2023. Front Aging Neurosci. 2023. PMID: 38146375 Free PMC article.
We investigated the contribution of caregiver and dyadic characteristics to the difference in perspective between caregiver-informants and people with dementia about difficulties experienced, when considering awareness of condition. ...More RADIX difficulties and hi …
We investigated the contribution of caregiver and dyadic characteristics to the difference in perspective between caregiver-in …
Investigating the Feasibility, Acceptability, and Impact of a Brief Dementia Awareness for Caregivers (DAC) Course: A Mixed Methods Study.
Patel R, Evans I, Stoner CR, Spector A. Patel R, et al. Clin Interv Aging. 2023 Nov 21;18:1923-1935. doi: 10.2147/CIA.S429556. eCollection 2023. Clin Interv Aging. 2023. PMID: 38020448 Free PMC article. Clinical Trial.
AIM: Informal caregivers are vital in assisting people with dementia. However, this role can significantly impact caregivers' lives and interventions to support them are crucial. This study aimed to develop a United Kingdom version of the Dementia Awareness for C
AIM: Informal caregivers are vital in assisting people with dementia. However, this role can significantly impact caregivers' …
Public Awareness, Knowledge, and Attitude Toward Alzheimer's Disease in Makkah, Saudi Arabia.
Muglan J, Alkhaldi RM, Alsharif MM, Almuwallad SI, Alotaibi RS. Muglan J, et al. Cureus. 2023 Nov 19;15(11):e49047. doi: 10.7759/cureus.49047. eCollection 2023 Nov. Cureus. 2023. PMID: 38116357 Free PMC article.
Among divorced/widowed participants, 16.2% had an overall good knowledge level of the disease compared to 8.3% of married respondents with recorded statistical significance (P=.049). Also, 20.4% of those with relatives diagnosed with Alzheimer's disease had good knowledge …
Among divorced/widowed participants, 16.2% had an overall good knowledge level of the disease compared to 8.3% of married respondents with r …
Awareness and Perception Toward Alzheimer's Disease Among Residents Living in the Jazan Province, Saudi Arabia: A Cross-Sectional Study.
Hakami F, Madkhali MA, Saleh E, Ayoub R, Moafa S, Moafa A, Alnami B, Maashi B, Khubrani S, Busayli W, Alhazmi A. Hakami F, et al. Cureus. 2023 Sep 1;15(9):e44505. doi: 10.7759/cureus.44505. eCollection 2023 Sep. Cureus. 2023. PMID: 37789999 Free PMC article.
Knowledge was highest in those aged >45 years (p = 0.018), in those with income > 15K SR (p = 0.004), in retired individuals (p = 0.023), and in those who learned about AD from books (p = 0.001), healthcare professionals (p = 0.001), or had an affected relative (p = …
Knowledge was highest in those aged >45 years (p = 0.018), in those with income > 15K SR (p = 0.004), in retired individuals (p = 0.02 …
Dementia awareness among elderly at risk for developing mild cognitive impairment: a cross sectional study at a university-based primary care clinic.
Ali MF, Ja'afar NIS, Krishnan TG, Zulkifle MAM, Khaidzir NK, Jamil TR, Man ZC, Aziz AFA. Ali MF, et al. BMC Geriatr. 2023 Aug 17;23(1):496. doi: 10.1186/s12877-023-04230-4. BMC Geriatr. 2023. PMID: 37592221 Free PMC article.
Patients with chronic disease have an elevated risk of developing mild cognitive impairment (MCI). This study aimed to assess the level of awareness of basic knowledge on dementia among the elderly, especially those at risk of developing mild cognitive impairment and its a
Patients with chronic disease have an elevated risk of developing mild cognitive impairment (MCI). This study aimed to assess the lev
Awareness of diagnosis predicts changes in quality of life in individuals with mild cognitive impairment and mild stage dementia.
Stites SD, Rubright JD, Harkins K, Karlawish J. Stites SD, et al. Int J Geriatr Psychiatry. 2023 Jun;38(6):e5939. doi: 10.1002/gps.5939. Int J Geriatr Psychiatry. 2023. PMID: 37300313 Free PMC article.
In contrast, patients aware of their diagnosis at baseline showed no statistically discernable changes in most QOL domains (all p > 0.05). ...Change in MoCA scores in patients unaware of their diagnosis was similar to that in patients aware of their diagno …
In contrast, patients aware of their diagnosis at baseline showed no statistically discernable changes in most QOL domains (all p &gt …
Evaluation of a dementia awareness game for undergraduate nursing students in Northern Ireland: a Pre-/Post-Test study.
Craig S, Stark P, Wilson CB, Carter G, Clarke S, Mitchell G. Craig S, et al. BMC Nurs. 2023 May 22;22(1):177. doi: 10.1186/s12912-023-01345-2. BMC Nurs. 2023. PMID: 37217937 Free PMC article.
INTRODUCTION: Although it is possible to live well with dementia and many individuals with dementia lead active lives with the help of family, friends, and communities, the general impression of dementia is frequently negative. ...
INTRODUCTION: Although it is possible to live well with dementia and many individuals with dementia lead active lives with the help of fa
Knowledge, Awareness, and Attitude of Healthcare Stakeholders on Alzheimer's Disease and Dementia in Qatar.
Paul P, Mahfoud ZR, Malik RA, Kaul R, Muffuh Navti P, Al-Sheikhly D, Chaari A. Paul P, et al. Int J Environ Res Public Health. 2023 Mar 3;20(5):4535. doi: 10.3390/ijerph20054535. Int J Environ Res Public Health. 2023. PMID: 36901551 Free PMC article. Review.
Overall, 229 responses were recorded between physicians (21%), nurses (21%), and medical students (25%), with two-thirds from Qatar. Over half the respondents reported that >10% of their patients were elderly (>60 years). Over 25% reported having contact with >50 …
Overall, 229 responses were recorded between physicians (21%), nurses (21%), and medical students (25%), with two-thirds from Qatar. Over ha …
Assessing awareness in severe Alzheimer's disease.
Huntley J, Bor D, Deng F, Mancuso M, Mediano PAM, Naci L, Owen AM, Rocchi L, Sternin A, Howard R. Huntley J, et al. Front Hum Neurosci. 2023 Feb 1;16:1035195. doi: 10.3389/fnhum.2022.1035195. eCollection 2022. Front Hum Neurosci. 2023. PMID: 36819296 Free PMC article.
ERPs were recorded during a visual perception paradigm. In response to viewing faces, two patients with severe AD provisionally demonstrated similar visual awareness negativity to healthy controls. Using a validated fMRI movie-viewing task, independent component analysis i …
ERPs were recorded during a visual perception paradigm. In response to viewing faces, two patients with severe AD provisionally demon …
Modifiable risk factors for dementia, and awareness of brain health behaviors: Results from the Five Lives Brain Health Ireland Survey (FLBHIS).
Dukelow T, Lawrence EG, Jacobson L, Vassilev P, Koychev I, Muhammed K, Kennelly SP. Dukelow T, et al. Front Psychol. 2023 Jan 12;13:1070259. doi: 10.3389/fpsyg.2022.1070259. eCollection 2022. Front Psychol. 2023. PMID: 36710802 Free PMC article.
Mean age was 59.7 years. Modifiable risk factors for dementia were prevalent. Relative to females, male gender was significantly associated with multiple risk factors. ...
Mean age was 59.7 years. Modifiable risk factors for dementia were prevalent. Relative to females, male gender was significantly asso …
Exploring the Clinical Utility of the Music Therapy Assessment Tool for Awareness in Disorders of Consciousness (MATADOC) with People with End-Stage Dementia.
Magee WL, Lipe AW, Ikeda T, Siegert RJ. Magee WL, et al. Brain Sci. 2022 Sep 28;12(10):1306. doi: 10.3390/brainsci12101306. Brain Sci. 2022. PMID: 36291240 Free PMC article.
The MATADOC is a standardized assessment for minimally responsive patients with disorders of consciousness and may be useful for ESD. ...
The MATADOC is a standardized assessment for minimally responsive patients with disorders of consciousness and may be useful for ESD. …
Public Awareness of Alzheimer's Disease: A Cross-Sectional Study from Saudi Arabia.
Alorfi NM. Alorfi NM. Int J Gen Med. 2022 Sep 28;15:7535-7546. doi: 10.2147/IJGM.S373447. eCollection 2022. Int J Gen Med. 2022. PMID: 36199585 Free PMC article.
Higher knowledge on risk factors was associated with having relatives diagnosed with Alzheimer's disease. Higher knowledge on life impact was associated with having newspaper and journal articles as the source of medical information. CONCLUSION: National awareness campaign …
Higher knowledge on risk factors was associated with having relatives diagnosed with Alzheimer's disease. Higher knowledge on life im …
What Are the Neural Correlates of Impaired Awareness of Social Cognition and Function in Dementia? A Systematic Review.
Hengstschläger A, Sommerlad A, Huntley J. Hengstschläger A, et al. Brain Sci. 2022 Aug 26;12(9):1136. doi: 10.3390/brainsci12091136. Brain Sci. 2022. PMID: 36138872 Free PMC article. Review.
This lack of awareness can impair social relationships, increase patients' and carers' burden, and contribute to increased rates of institutionalization. ...
This lack of awareness can impair social relationships, increase patients' and carers' burden, and contribute to increased rates of i …
Eliciting Implicit Awareness in Alzheimer's Disease and Mild Cognitive Impairment: A Task-Based Functional MRI Study.
Tondelli M, Benuzzi F, Ballotta D, Molinari MA, Chiari A, Zamboni G. Tondelli M, et al. Front Aging Neurosci. 2022 Apr 12;14:816648. doi: 10.3389/fnagi.2022.816648. eCollection 2022. Front Aging Neurosci. 2022. PMID: 35493936 Free PMC article.
RESULTS: Twenty-one patients were recruited: 12 were classified as aware and 9 as unaware according to anosognosia scales (based on clinical judgment and patient-caregiver discrepancy). ...PCC differential activation was instead negative in unaware patient
RESULTS: Twenty-one patients were recruited: 12 were classified as aware and 9 as unaware according to anosognosia scales (based on c …
Development and acceptability of a brief, evidence-based Dementia Awareness for Caregivers course in low- and middle-income countries.
Stoner CR, Lakshminarayanan M, Mograbi DC, Vaitheswaran S, Bertrand E, Schimidt Brum P, Durgante H, Ferri CP, Mkenda S, Walker R, Dotchin C, Paddick SM, Chandra M, Krishna M, Du B, Shaji KS, Fisher E, Spector A. Stoner CR, et al. Dementia (London). 2022 Feb;21(2):598-617. doi: 10.1177/14713012211055316. Epub 2021 Dec 9. Dementia (London). 2022. PMID: 34886707 Free PMC article.
BACKGROUND: Knowledge of and attitudes towards dementia vary across countries, and for caregivers in low- and middle-income countries (LMICs), access to information can be challenging. There is an urgent need for brief, easily accessible and culturally appropriate educatio …
BACKGROUND: Knowledge of and attitudes towards dementia vary across countries, and for caregivers in low- and middle-income countries …
Preserved Consciousness in Alzheimer's Disease and Other Dementias: Caregiver Awareness and Communication Strategies.
Warren A. Warren A. Front Psychol. 2021 Dec 7;12:790025. doi: 10.3389/fpsyg.2021.790025. eCollection 2021. Front Psychol. 2021. PMID: 34950092 Free PMC article. Review.
The sum of findings indicates a positive relationship between enhanced caregiver awareness and training, positive interactions, and improved QOL measures among patients and caregivers. A multidirectional relationship was found among healthcare policies, train …
The sum of findings indicates a positive relationship between enhanced caregiver awareness and training, positive interactions, and i …
Self-awareness in Dementia: a Taxonomy of Processes, Overview of Findings, and Integrative Framework.
Mograbi DC, Huntley J, Critchley H. Mograbi DC, et al. Curr Neurol Neurosci Rep. 2021 Nov 24;21(12):69. doi: 10.1007/s11910-021-01155-6. Curr Neurol Neurosci Rep. 2021. PMID: 34817738 Free PMC article. Review.
Findings on self-awareness in dementia are reviewed, indicating the relative preservation of capacities such as body ownership and agency, despite impairments in higher-level cognitive processes, such as autobiographical memory and emotional regulation. ...
Findings on self-awareness in dementia are reviewed, indicating the relative preservation of capacities such as body ownership and ag …
Intercepting Dementia: Awareness and Innovation as Key Tools.
Brai E, Tonacci A, Brugada-Ramentol V, D'Andrea F, Alberi L. Brai E, et al. Front Aging Neurosci. 2021 Oct 13;13:730727. doi: 10.3389/fnagi.2021.730727. eCollection 2021. Front Aging Neurosci. 2021. PMID: 34720991 Free PMC article.
Due to a growing aging rate, dementia-related disorders currently affect around 50 million people worldwide and by 2050 this number is expected to reach 150 million. Additionally to patients, these neurodegenerative pathologies have a strong impact on family members …
Due to a growing aging rate, dementia-related disorders currently affect around 50 million people worldwide and by 2050 this number is expec …
Does awareness of condition help people with mild-to-moderate dementia to live well? Findings from the IDEAL programme.
Alexander CM, Martyr A, Gamble LD, Savage SA, Quinn C, Morris RG, Collins R, Clare L; IDEAL programme research team. Alexander CM, et al. BMC Geriatr. 2021 Sep 25;21(1):511. doi: 10.1186/s12877-021-02468-4. BMC Geriatr. 2021. PMID: 34563135 Free PMC article.
We explored awareness of the condition and diagnosis in people with mild-to-moderate dementia, and how this relates to quality of life, well-being, life satisfaction, and caregiver stress. METHODS: This study was a cross-sectional exploratory analysis of data from the IDEA …
We explored awareness of the condition and diagnosis in people with mild-to-moderate dementia, and how this relates to quality of life, well …
Knowledge, Awareness, and Attitude Towards Dementia Amongst Medical Undergraduate Students: Can a Sensitization Program Help?
Patel I, Patel J, Jindal SV, Desai D, Desai S. Patel I, et al. Ann Indian Acad Neurol. 2021 Sep-Oct;24(5):754-758. doi: 10.4103/aian.AIAN_874_20. Epub 2021 Aug 4. Ann Indian Acad Neurol. 2021. PMID: 35002135 Free PMC article.
BACKGROUND: Current undergraduate medical academic curriculum does not emphasize on evaluation and management of dementia. The knowledge and attitude of medical students towards patients with dementia in India has not been ascertained previously. ...Patient contact …
BACKGROUND: Current undergraduate medical academic curriculum does not emphasize on evaluation and management of dementia. The knowledge and …
Residential aged care staff awareness of and engagement with dementia-specific support services and education.
Williams R, Ockerby C, Rawson H, Redley B, Hutchinson A. Williams R, et al. Australas J Ageing. 2021 Sep;40(3):e223-e233. doi: 10.1111/ajag.12904. Epub 2021 Jan 31. Australas J Ageing. 2021. PMID: 33522078 Free PMC article.

A significantly higher proportion of registered nurses had accessed dementia-specific support services in the past 2 years compared with enrolled nurses and personal care assistants (P < 0.001). CONCLUSION: A relatively large proportion of RAC staff were unaware of avai

A significantly higher proportion of registered nurses had accessed dementia-specific support services in the past 2 years compared with enr …
Awareness of Cognitive Decline in Patients With Alzheimer's Disease: A Systematic Review and Meta-Analysis.
Cacciamani F, Houot M, Gagliardi G, Dubois B, Sikkes S, Sánchez-Benavides G, Denicolò E, Molinuevo JL, Vannini P, Epelbaum S. Cacciamani F, et al. Front Aging Neurosci. 2021 Aug 3;13:697234. doi: 10.3389/fnagi.2021.697234. eCollection 2021. Front Aging Neurosci. 2021. PMID: 34413767 Free PMC article.
Results: We systematically reviewed 283 articles, and conducted a meta-analysis of 18 articles on prodromal AD (or MCI), showing that ACD was not significantly different between patients with amnestic and non-amnestic MCI (SMD = 0.09, p = 0.574); ACD was significantly poor …
Results: We systematically reviewed 283 articles, and conducted a meta-analysis of 18 articles on prodromal AD (or MCI), showing that ACD wa …
Caregiving, care burden and awareness of caregivers and patients with dementia in Asian locations: a secondary analysis.
Shim YS, Park KH, Chen C, Dominguez JC, Kang K, Kim HJ, Hong Z, Lin YT, Chu LW, Jung S, Kim S. Shim YS, et al. BMC Geriatr. 2021 Apr 7;21(1):230. doi: 10.1186/s12877-021-02178-x. BMC Geriatr. 2021. PMID: 33827446 Free PMC article.
BACKGROUND: This study investigated the differences in caregiver activity, caregiver burden, and awareness of both caregivers and patients with Alzheimer's disease (AD) across different Asian locations. ...CONCLUSIONS: Caregiving, caregiver burd …
BACKGROUND: This study investigated the differences in caregiver activity, caregiver burden, and awareness of both caregive
Anosognosia in Mild Cognitive Impairment: Lack of Awareness of Memory Difficulties Characterizes Prodromal Alzheimer's Disease.
Bastin C, Giacomelli F, Miévis F, Lemaire C, Guillaume B, Salmon E. Bastin C, et al. Front Psychiatry. 2021 Mar 31;12:631518. doi: 10.3389/fpsyt.2021.631518. eCollection 2021. Front Psychiatry. 2021. PMID: 33868048 Free PMC article.
A group of 44 patients with amnestic MCI and a group of 29 healthy older participants (CTRL) performed two Feeling-of-Knowing tasks (episodic and semantic FOK) and responded to the Functional Memory Scale (MARS), also completed by one of their relatives. ...No diffi …
A group of 44 patients with amnestic MCI and a group of 29 healthy older participants (CTRL) performed two Feeling-of-Knowing tasks ( …
Mental and Physical Self-Awareness of Alzheimer Patients: Decreased Awareness of Amnesia and Increased Fear of Falling Compared to Views of Families: The Tajiri and Wakuya Projects.
Kumai K, Kawabata N, Meguro K, Takada J, Nakamura K, Yamaguchi S. Kumai K, et al. Dement Geriatr Cogn Disord. 2021;50(1):96-102. doi: 10.1159/000516656. Epub 2021 Jun 8. Dement Geriatr Cogn Disord. 2021. PMID: 34102642 Free article.
INTRODUCTION: The purpose of this study is to examine self-awareness of patients with Alzheimer disease (AD) regarding forgetfulness and physical status, with the goal of further psychological understanding of these patients. ...In contrast, FES scores of the AD gro …
INTRODUCTION: The purpose of this study is to examine self-awareness of patients with Alzheimer disease (AD) regarding forgetfulness …
Impaired explicit self-awareness but preserved behavioral regulation in patients with Alzheimer disease.
Geurten M, Salmon E, Bastin C. Geurten M, et al. Aging Ment Health. 2021 Jan;25(1):142-148. doi: 10.1080/13607863.2019.1675142. Epub 2019 Oct 10. Aging Ment Health. 2021. PMID: 31599182 Free article.
However, recent findings suggest that, despite an inability to explicitly estimate their own cognitive functioning, patients might demonstrate some implicit recognition of difficulties. In this study, we tested whether a behavioral dissociation between explicit and implici …
However, recent findings suggest that, despite an inability to explicitly estimate their own cognitive functioning, patients might de …
Public awareness and knowledge of factors associated with dementia in China.
Zheng YB, Shi L, Gong YM, Wang XX, Lu QD, Que JY, Khan MZ, Bao YP, Lu L. Zheng YB, et al. BMC Public Health. 2020 Oct 17;20(1):1567. doi: 10.1186/s12889-020-09665-7. BMC Public Health. 2020. PMID: 33069235 Free PMC article.
The following sociodemographic characteristics were associated with more comprehensive knowledge of dementia risk and protective factors: women, young age, high education levels, nonmanual jobs, and contact with patients with dementia. CONCLUSIONS: Public awareness and kno …
The following sociodemographic characteristics were associated with more comprehensive knowledge of dementia risk and protective factors: wo …
Promoting dementia awareness in African-American faith communities.
Epps F, Alexander K, Brewster GS, Parker LJ, Chester M, Tomlinson A, Adkins A, Zingg S, Thornton J. Epps F, et al. Public Health Nurs. 2020 Sep;37(5):715-721. doi: 10.1111/phn.12759. Epub 2020 Jun 18. Public Health Nurs. 2020. PMID: 32557783 Free PMC article.
Several attendees identified themselves as church leaders, community/church members, caregivers, and/or healthcare professionals. Attendees expressed the educational content was applicable to themselves or their families. ...
Several attendees identified themselves as church leaders, community/church members, caregivers, and/or healthcare professionals. Att …
Prognostic Awareness, Disease and Palliative Understanding Among Caregivers of Patients With Dementia.
Gabbard J, Johnson D, Russell G, Spencer S, Williamson JD, McLouth LE, Ferris KG, Sink K, Brenes G, Yang M. Gabbard J, et al. Am J Hosp Palliat Care. 2020 Sep;37(9):683-691. doi: 10.1177/1049909119895497. Epub 2019 Dec 19. Am J Hosp Palliat Care. 2020. PMID: 31854201 Free PMC article.
Surveys were mailed to 200 caregivers of PwD in 2012 (cohort 1). Surveys were sent to new subset of caregivers of PwD (n = 80) in 2018 (cohort 2) to assess trends over time. RESULTS: A total of 154 of caregivers completed the survey (response rate 55%). Compa …
Surveys were mailed to 200 caregivers of PwD in 2012 (cohort 1). Surveys were sent to new subset of caregivers of PwD (n = 80) …
GP awareness, practice, knowledge and confidence: evaluation of the first nation-wide dementia-focused continuing medical education program in Australia.
Casey AN, Islam MM, Schütze H, Parkinson A, Yen L, Shell A, Winbolt M, Brodaty H. Casey AN, et al. BMC Fam Pract. 2020 Jun 10;21(1):104. doi: 10.1186/s12875-020-01178-x. BMC Fam Pract. 2020. PMID: 32522153 Free PMC article.
BACKGROUND: Dementia is under-diagnosed in primary care. Timely diagnosis and care management improve outcomes for patients and caregivers. This research evaluated the effectiveness of a nationwide Continuing Medical Education (CME) program to enhance dementia-relat …
BACKGROUND: Dementia is under-diagnosed in primary care. Timely diagnosis and care management improve outcomes for patients and ca
Altered Time Awareness in Dementia.
Requena-Komuro MC, Marshall CR, Bond RL, Russell LL, Greaves C, Moore KM, Agustus JL, Benhamou E, Sivasathiaseelan H, Hardy CJD, Rohrer JD, Warren JD. Requena-Komuro MC, et al. Front Neurol. 2020 Apr 21;11:291. doi: 10.3389/fneur.2020.00291. eCollection 2020. Front Neurol. 2020. PMID: 32373055 Free PMC article.
Disrupted time awareness over such intervals is a clinical feature in a number of frontotemporal dementia syndromes and Alzheimer's disease, but has not been studied and compared systematically in these diseases. We used a semi-structured caregiver survey to capture time-r …
Disrupted time awareness over such intervals is a clinical feature in a number of frontotemporal dementia syndromes and Alzheimer's disease, …
Awareness raising workshop for nursing students on the elderly with Alzheimer's disease: contributions to education.
Barros M, Zamberlan C, Gehlen MH, Rosa PHD, Ilha S. Barros M, et al. Rev Bras Enferm. 2020;73 Suppl 3:e20190021. doi: 10.1590/0034-7167-2019-0021. Epub 2020 Jul 13. Rev Bras Enferm. 2020. PMID: 32696903 Free article. English, Portuguese.
OBJECTIVE: To describe the contribution of an awareness-raising workshop for nursing students on Alzheimer's disease in the context of the elderly/family. METHODS: Strategic action-research developed with 15 university students from the sixth to the eighth semester of Nurs …
OBJECTIVE: To describe the contribution of an awareness-raising workshop for nursing students on Alzheimer's disease in the context of the e …
Reduced Awareness of Memory Deficit is Associated With Increased Medicare Home Health Care Use in Dementia.
DeFeis B, Chapman S, Zhu C, Azar M, Sunderaraman P, Ornstein K, Gu Y, Cosentino S. DeFeis B, et al. Alzheimer Dis Assoc Disord. 2019 Jan-Mar;33(1):62-67. doi: 10.1097/WAD.0000000000000287. Alzheimer Dis Assoc Disord. 2019. PMID: 30531365 Free PMC article.
The disproportionate use of in-home assistance as a function of awareness level may reflect dangers faced by patients, and challenges faced by caregivers, when patients have limited awareness of their memory deficits. Current results have implications for cli …
The disproportionate use of in-home assistance as a function of awareness level may reflect dangers faced by patients, and challenges …
Analyzing Twitter as a Platform for Alzheimer-Related Dementia Awareness: Thematic Analyses of Tweets.
Cheng TY, Liu L, Woo BK. Cheng TY, et al. JMIR Aging. 2018 Dec 10;1(2):e11542. doi: 10.2196/11542. JMIR Aging. 2018. PMID: 31518232 Free PMC article.
BACKGROUND: Dementia is a prevalent disorder among adults and often subjects an individual and his or her family. Social media websites may serve as a platform to raise awareness for dementia and allow researchers to explore health-related data. ...
BACKGROUND: Dementia is a prevalent disorder among adults and often subjects an individual and his or her family. Social media websit …
The Impact of Awareness of and Concern About Memory Performance on the Prediction of Progression From Mild Cognitive Impairment to Alzheimer Disease Dementia.
Munro CE, Donovan NJ, Amariglio RE, Papp KV, Marshall GA, Rentz DM, Pascual-Leone A, Sperling RA, Locascio JJ, Vannini P. Munro CE, et al. Am J Geriatr Psychiatry. 2018 Aug;26(8):896-904. doi: 10.1016/j.jagp.2018.04.008. Epub 2018 May 3. Am J Geriatr Psychiatry. 2018. PMID: 29866588 Free PMC article.
RESULTS: Baseline anosognosia was apparent in the Progressor-MCI group, whereas participants in the Stable-MCI group demonstrated relative awareness of their memory performance. Baseline awareness scores successfully predicted whether an individual would progress to AD-dem …
RESULTS: Baseline anosognosia was apparent in the Progressor-MCI group, whereas participants in the Stable-MCI group demonstrated relativ
Assessment of Patient Self-awareness and Related Neural Correlates in Frontotemporal Dementia and Corticobasal Syndrome.
Levy S, Gansler D, Huey E, Wassermann E, Grafman J. Levy S, et al. Arch Clin Neuropsychol. 2018 Aug 1;33(5):519-529. doi: 10.1093/arclin/acx105. Arch Clin Neuropsychol. 2018. PMID: 29088311 Free PMC article.
OBJECTIVE: We compared two different methods of assessing self-awareness (clinician-rated vs. self- and caregiver report) in participants with neurodegenerative conditions. ...Data were collected on brain volume, neurocognitive function, demographic characteristics, and tw …
OBJECTIVE: We compared two different methods of assessing self-awareness (clinician-rated vs. self- and caregiver report) in particip …
Underdiagnosis of Dementia: an Observational Study of Patterns in Diagnosis and Awareness in US Older Adults.
Amjad H, Roth DL, Sheehan OC, Lyketsos CG, Wolff JL, Samus QM. Amjad H, et al. J Gen Intern Med. 2018 Jul;33(7):1131-1138. doi: 10.1007/s11606-018-4377-y. Epub 2018 Mar 5. J Gen Intern Med. 2018. PMID: 29508259 Free PMC article.
BACKGROUND: Many older adults living with dementia have not been formally diagnosed. Even when clinicians document the diagnosis, patients and families may be unaware of the diagnosis. Knowledge of how individual characteristics affect detection and awareness of dementia i …
BACKGROUND: Many older adults living with dementia have not been formally diagnosed. Even when clinicians document the diagnosis, patient
Disease awareness may increase risk of suicide in young onset dementia: A case report.
Baptista MAT, Santos RL, Kimura N, Lacerda IB, Dourado MCN. Baptista MAT, et al. Dement Neuropsychol. 2017 Jul-Sep;11(3):308-311. doi: 10.1590/1980-57642016dn11-030015. Dement Neuropsychol. 2017. PMID: 29213530 Free PMC article.
This case points to the existence of specific issues related to young onset dementia and the clinical importance of identifying and treating patients who might be aware of their condition....
This case points to the existence of specific issues related to young onset dementia and the clinical importance of identifying and treating …
Memory self-awareness in the preclinical and prodromal stages of Alzheimer's disease.
Vannini P, Amariglio R, Hanseeuw B, Johnson KA, McLaren DG, Chhatwal J, Pascual-Leone A, Rentz D, Sperling RA. Vannini P, et al. Neuropsychologia. 2017 May;99:343-349. doi: 10.1016/j.neuropsychologia.2017.04.002. Epub 2017 Apr 3. Neuropsychologia. 2017. PMID: 28385579 Free PMC article.
This study aims at improving our mechanistic understanding of how alterations in memory self-awareness are related to pathological changes in clinically normal (CN) adults and MCI patients. 297 CN and MCI patients underwent PiB-PET (Positron Emission Tomography usin …
This study aims at improving our mechanistic understanding of how alterations in memory self-awareness are related to pathological changes i …
Awareness, apathy, and depression in Alzheimer's disease and mild cognitive impairment.
Jacus JP. Jacus JP. Brain Behav. 2017 Mar 6;7(4):e00661. doi: 10.1002/brb3.661. eCollection 2017 Apr. Brain Behav. 2017. PMID: 28413709 Free PMC article.
METHODS: We compared 20 mild AD patients to 20 mild cognitive impairment (MCI) patients, using the Patient Competency Rating Scale (PCRS; patient vs. caregiver report) and the Self-Consciousness Scale (rating scale). All patients underwen …
METHODS: We compared 20 mild AD patients to 20 mild cognitive impairment (MCI) patients, using the Patient Competency R …
Low Cognitive Awareness, but Not Complaint, is a Good Marker of Preclinical Alzheimer's Disease.
Cacciamani F, Tandetnik C, Gagliardi G, Bertin H, Habert MO, Hampel H, Boukadida L, Révillon M, Epelbaum S, Dubois B; INSIGHT-PreAD study group. Cacciamani F, et al. J Alzheimers Dis. 2017;59(2):753-762. doi: 10.3233/JAD-170399. J Alzheimers Dis. 2017. PMID: 28671134 Free article.
Conversely, a low cognitive awareness (namely, when subjects report fewer difficulties than their relatives do) may represent a very early form of anosognosia and serve as a specific indicator of preclinical AD. ...
Conversely, a low cognitive awareness (namely, when subjects report fewer difficulties than their relatives do) may represent a very …
The Structured Interview for Insight and Judgment in Dementia: Development and validation of a new instrument to assess awareness in patients with dementia.
Parrao T, Brockman S, Bucks RS, Bruce DG, Davis WA, Hatch KK, Leavy TL, Axten CA, Starkstein SE. Parrao T, et al. Alzheimers Dement (Amst). 2016 Dec 26;7:24-32. doi: 10.1016/j.dadm.2016.12.012. eCollection 2017. Alzheimers Dement (Amst). 2016. PMID: 28203628 Free PMC article.
INTRODUCTION: Poor insight about their cognitive and functional deficits is highly prevalent in patients with Alzheimer's disease (AD); however, there is a lack of reliable, valid instrumentation to measure this construct. ...It showed good predictive validity based on 1-y …
INTRODUCTION: Poor insight about their cognitive and functional deficits is highly prevalent in patients with Alzheimer's disease (AD …
Self-reported and informant-reported memory functioning and awareness in patients with mild cognitive impairment and Alzheimers disease.
Silva MR, Moser D, Pflüger M, Pusswald G, Stögmann E, Dal-Bianco P, Auff E, Lehrner J. Silva MR, et al. Neuropsychiatr. 2016 Jun;30(2):103-12. doi: 10.1007/s40211-016-0185-y. Epub 2016 Jun 13. Neuropsychiatr. 2016. PMID: 27294268 Free PMC article.
This study served to find out whether awareness of subjective memory complies with objective performance, if differences in awareness are observed longitudinally and whether decrease of awareness can serve as a predictor of AD in MCI patients. METHODS: Thirty-four patie
This study served to find out whether awareness of subjective memory complies with objective performance, if differences in awareness are ob …
What contributes to a good quality of life in early dementia? Awareness and the QoL-AD: a cross-sectional study.
Woods RT, Nelis SM, Martyr A, Roberts J, Whitaker CJ, Markova I, Roth I, Morris R, Clare L. Woods RT, et al. Health Qual Life Outcomes. 2014 Jun 11;12:94. doi: 10.1186/1477-7525-12-94. Health Qual Life Outcomes. 2014. PMID: 24919416 Free PMC article.
METHODS: Participants were 101 individuals with early-stage dementia and their family carers participating in the Memory Impairment and Dementia Awareness (MIDAS) Study. ...
METHODS: Participants were 101 individuals with early-stage dementia and their family carers participating in the Memory Impairment a …
Not if, but when: impact of a driving and dementia awareness and education campaign for primary care physicians.
Moorhouse P, Hamilton LM. Moorhouse P, et al. Can Geriatr J. 2014 Jun 3;17(2):70-5. doi: 10.5770/cgj.17.109. eCollection 2014 Jun. Can Geriatr J. 2014. PMID: 24883165 Free PMC article.
Although the Web-based resource and awareness campaign were not associated with improvement in physician comfort in assessing driving risk in dementia, after completion of the campaign, fewer PCPs reported avoiding the topic of driving. Additionally, family resistance and …
Although the Web-based resource and awareness campaign were not associated with improvement in physician comfort in assessing driving risk i …
Investigation of toilet activities in elderly patients with dementia from the viewpoint of motivation and self-awareness.
Uchimoto K, Yokoi T, Yamashita T, Okamura H. Uchimoto K, et al. Am J Alzheimers Dis Other Demen. 2013 Aug;28(5):459-68. doi: 10.1177/1533317513494438. Am J Alzheimers Dis Other Demen. 2013. PMID: 23925266 Free PMC article.
Toilet activities of the elderly patients with dementia were observed focusing on care conditions and investigated based on Hull's drive reduction theory (behavior = drive habit incentive) and our self-awareness model (consisting of theory of mind, self-evaluation, and sel …
Toilet activities of the elderly patients with dementia were observed focusing on care conditions and investigated based on Hull's dr …
Awareness of deficits in Alzheimer's disease patients: analysis of performance prediction discrepancies.
Antoine P, Nandrino JL, Billiet C. Antoine P, et al. Psychiatry Clin Neurosci. 2013 May;67(4):237-44. doi: 10.1111/pcn.12050. Psychiatry Clin Neurosci. 2013. PMID: 23683154 Free article.
AIM: Unawareness has been operationalized in terms of a discrepancy between the patient's self-reports and three main categories of standards: judgment of a relative, clinical assessment, and objective test performance. ...METHODS : Analysis was conducted on cogniti …
AIM: Unawareness has been operationalized in terms of a discrepancy between the patient's self-reports and three main categories of s …
Cultural aspects in dementia: differences in the awareness of Brazilian caregivers.
Santos RL, Sousa MF, Ganem AC, Silva TV, Dourado MC. Santos RL, et al. Trends Psychiatry Psychother. 2013;35(3):191-7. doi: 10.1590/s2237-60892013000300006. Trends Psychiatry Psychother. 2013. PMID: 25923391 Free article.
Interpretative phenomenological analysis was used to analyze differences in the caregivers' reports. RESULTS AND DISCUSSION: The participants, mostly spouses and daughters, presented moderate caregiver burden and different levels of awareness (aware, partially aware …
Interpretative phenomenological analysis was used to analyze differences in the caregivers' reports. RESULTS AND DISCUSSION: The part …
Anosognosia: patients' distress and self-awareness of deficits in Alzheimer's disease.
Maki Y, Amari M, Yamaguchi T, Nakaaki S, Yamaguchi H. Maki Y, et al. Am J Alzheimers Dis Other Demen. 2012 Aug;27(5):339-45. doi: 10.1177/1533317512452039. Am J Alzheimers Dis Other Demen. 2012. PMID: 22815083 Free PMC article.
Self-awareness was assessed using the Anosognosia Questionnaire for Dementia in 12 pairs of MCI outpatients and caregivers, 23 with mild AD, and 18 with moderate AD. The discrepancy between patient's and caregiver's evaluation (anosognosia) became greater as …
Self-awareness was assessed using the Anosognosia Questionnaire for Dementia in 12 pairs of MCI outpatients and caregivers, 23 with m …
Investigation of eating actions of people with dementia from the viewpoint of self-awareness.
Yokoi T, Haraguchi E, Hashimoto T, Okamura H. Yokoi T, et al. Am J Alzheimers Dis Other Demen. 2012 Jun;27(4):228-37. doi: 10.1177/1533317512449728. Am J Alzheimers Dis Other Demen. 2012. PMID: 22739030 Free PMC article.
The key to improve the quality of life of people with dementia and caregivers is whether caregivers can understand the meanings of the puzzling words and deeds of people with dementia. Therefore, 2 of the authors observed and wrote down the puzzling words and deeds …
The key to improve the quality of life of people with dementia and caregivers is whether caregivers can understand the meaning …
Survey in Shanghai communities: the public awareness of and attitude towards dementia.
Li X, Fang W, Su N, Liu Y, Xiao S, Xiao Z. Li X, et al. Psychogeriatrics. 2011 Jun;11(2):83-9. doi: 10.1111/j.1479-8301.2010.00349.x. Psychogeriatrics. 2011. PMID: 21707855 Free article.
Questionnaires were randomly distributed to 1806 families, each family had one respondent. RESULTS: A total of 1531 questionnaires were available. ...Of the respondents, 43% indicated that they would not be ashamed of having a demented relative, and 45% did not thin …
Questionnaires were randomly distributed to 1806 families, each family had one respondent. RESULTS: A total of 1531 questionnaires we …
GPs' attitudes, awareness, and practice regarding early diagnosis of dementia.
Ahmad S, Orrell M, Iliffe S, Gracie A. Ahmad S, et al. Br J Gen Pract. 2010 Sep;60(578):e360-5. doi: 10.3399/bjgp10X515386. Br J Gen Pract. 2010. PMID: 20849686 Free PMC article.
BACKGROUND: In primary care, the diagnosis of dementia is often delayed and the 2007 National Audit Office Report concluded action was needed to improve patient care and value for money. AIM: To investigate the attitudes, awareness, and practice of GPs in England regarding …
BACKGROUND: In primary care, the diagnosis of dementia is often delayed and the 2007 National Audit Office Report concluded action was neede …
Associations among measures of awareness of cognitive deficits in dementia.
Okonkwo OC, Spitznagel MB, Alosco ML, Tremont G. Okonkwo OC, et al. Alzheimers Dement. 2010 Jul;6(4):312-8. doi: 10.1016/j.jalz.2009.06.005. Alzheimers Dement. 2010. PMID: 20630413 Free PMC article.
In this study, we examined the relationships among various measures of awareness of cognitive deficits in dementia, and investigated the unique association between clinician ratings and alternative approaches to assessing awareness. METHODS: Participants included 108 patients
In this study, we examined the relationships among various measures of awareness of cognitive deficits in dementia, and investigated the uni …
Knowledge of Alzheimer's disease, feelings of shame, and awareness of services among Korean American elders.
Yuri Jang, Kim G, Chiriboga D. Yuri Jang, et al. J Aging Health. 2010 Jun;22(4):419-33. doi: 10.1177/0898264309360672. Epub 2010 Mar 1. J Aging Health. 2010. PMID: 20194682 Free PMC article.
OBJECTIVE: To explore predictors of knowledge of Alzheimer's disease (AD), feelings of shame if a family member were to have AD, and awareness of AD-related services among Korean American elders. ...RESULTS: Greater knowledge of AD is predicted by higher levels of educatio …
OBJECTIVE: To explore predictors of knowledge of Alzheimer's disease (AD), feelings of shame if a family member were to have AD, and …
Family physicians and dementia in Canada: Part 1. Clinical practice guidelines: awareness, attitudes, and opinions.
Pimlott NJ, Persaud M, Drummond N, Cohen CA, Silvius JL, Seigel K, Hollingworth GR, Dalziel WB. Pimlott NJ, et al. Can Fam Physician. 2009 May;55(5):506-7.e1-5. Can Fam Physician. 2009. PMID: 19439707 Free PMC article.
PARTICIPANTS: Eighteen family physicians. METHODS: Using a semistructured interview guide, we conducted 4 qualitative focus groups of 4 to 6 family physicians whose practices we had audited in a previous study. ...CONCLUSION: Family physicians were minimally …
PARTICIPANTS: Eighteen family physicians. METHODS: Using a semistructured interview guide, we conducted 4 qualitative focus groups of …
Public awareness of dementia: A study in Botucatu, a medium-sized city in the State of Sao Paulo, Brazil.
Schelp AO, Nieri AB, Hamamoto Filho PT, Bales AM, Mendes-Chiloff CL. Schelp AO, et al. Dement Neuropsychol. 2008 Jul-Sep;2(3):192-196. doi: 10.1590/S1980-57642009DN20300005. Dement Neuropsychol. 2008. PMID: 29213569 Free PMC article.
DISCUSSION: Better understanding of public awareness of dementia provides the clue to more effective health and social policies in order to achieve a higher rate of early diagnosis and thereby possibly decreasing patient, family and caregiver distress....
DISCUSSION: Better understanding of public awareness of dementia provides the clue to more effective health and social policies in order to …
Memory impairment and awareness of memory deficits in early-stage Alzheimer's disease.
Mimura M. Mimura M. Tohoku J Exp Med. 2008 Jun;215(2):133-40. doi: 10.1620/tjem.215.133. Tohoku J Exp Med. 2008. PMID: 18577842 Free article. Review.
Current methods of measuring awareness tend to fall into two categories, i.e., to introduce a questionnaire assessing patient/caregiver discrepancies; or to ask a patient to prospectively predict or retrospectively postdict their own memory performances. ...
Current methods of measuring awareness tend to fall into two categories, i.e., to introduce a questionnaire assessing patient/care
Self-awareness and self-monitoring of cognitive and behavioral deficits in behavioral variant frontotemporal dementia, primary progressive aphasia and probable Alzheimer's disease.
Banks S, Weintraub S. Banks S, et al. Brain Cogn. 2008 Jun;67(1):58-68. doi: 10.1016/j.bandc.2007.11.004. Epub 2008 Jan 14. Brain Cogn. 2008. PMID: 18194832 Free PMC article.
Different components of insight, self-awareness and self-monitoring, are also often considered separate phenomena. The current study compared insight in patients with PPA, bvFTD, and probable Alzheimer's disease (PrAD) and a group of cognitively intact control subjects. .. …
Different components of insight, self-awareness and self-monitoring, are also often considered separate phenomena. The current study compare …
Objective metamemory testing captures awareness of deficit in Alzheimer's disease.
Cosentino S, Metcalfe J, Butterfield B, Stern Y. Cosentino S, et al. Cortex. 2007 Oct;43(7):1004-19. doi: 10.1016/s0010-9452(08)70697-x. Cortex. 2007. PMID: 17941356 Free PMC article.
For reasons that remain unknown, there is marked inter-person variability in awareness of episodic memory loss in patients with Alzheimer's disease (AD). Existing research designs, primarily subjective in nature, have been at a relative disadvantage for evaluating d …
For reasons that remain unknown, there is marked inter-person variability in awareness of episodic memory loss in patients with Alzhe …
Awareness of disease in dementia: Development of a multidimensional rating scale.
Dourado M, Marinho V, Soares C, Engelhardt E, Laks J. Dourado M, et al. Dement Neuropsychol. 2007 Jan-Mar;1(1):74-80. doi: 10.1590/S1980-57642008DN10100012. Dement Neuropsychol. 2007. PMID: 29213371 Free PMC article.
Mean MMSE was 21.03.3(CDR1) and 17.63.5(CDR2).Mean Cornell was 4.82.3(CDR1) and 4.21.9 (CDR2). The patient and caregiver dyads were aware of problems, mainly of those related to social, family and affective relations. ...CONCLUSION: The ASPIDD is a multidimen …
Mean MMSE was 21.03.3(CDR1) and 17.63.5(CDR2).Mean Cornell was 4.82.3(CDR1) and 4.21.9 (CDR2). The patient and caregiver dyads …
Self awareness and personality change in dementia.
Rankin KP, Baldwin E, Pace-Savitsky C, Kramer JH, Miller BL. Rankin KP, et al. J Neurol Neurosurg Psychiatry. 2005 May;76(5):632-9. doi: 10.1136/jnnp.2004.042879. J Neurol Neurosurg Psychiatry. 2005. PMID: 15834018 Free PMC article.
However, self awareness of personality has not been quantified in these patient groups. METHODS: Twenty two patients (12 with frontal variant FTD; 10 with early AD) and 11 older adult normal controls completed self report questionnaires (the Interpersonal Adjectives …
However, self awareness of personality has not been quantified in these patient groups. METHODS: Twenty two patients (12 with …
Knowledge of personal information and caregiver awareness in Alzheimer's disease.
Ala TA, Berck LG, Popovich AM. Ala TA, et al. Am J Alzheimers Dis Other Demen. 2005 Mar-Apr;20(2):119-25. doi: 10.1177/153331750502000202. Am J Alzheimers Dis Other Demen. 2005. PMID: 15844758 Free PMC article.
The caregivers of the patients with intermediate MMSE scores made the most errors in their predictions, with up to 50 percent being incorrect and up to 37 percent overestimating their patients' abilities. ...Caregivers of patients with MMSE rang …
The caregivers of the patients with intermediate MMSE scores made the most errors in their predictions, with up to 50 percent …
Awareness of Alzheimer patients.
Tappen RM. Tappen RM. Am J Public Health. 1988 Aug;78(8):987-8. doi: 10.2105/ajph.78.8.987-a. Am J Public Health. 1988. PMID: 3389445 Free PMC article. No abstract available.