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Starting point for benchmarking outcomes and reporting of pituitary adenoma surgery within the European Reference Network on Rare Endocrine Conditions (Endo-ERN): results from a meta-analysis and survey study.
Endocr Connect. 2022 Dec 13;12(1):e220349. doi: 10.1530/EC-22-0349. Print 2023 Jan 1.
Endocr Connect. 2022.
PMID: 36327151
Free PMC article.
Review.
The Role of the European Reference Network for Rare Bone Diseases (ERN BOND) and European Registries for Rare Bone and Mineral Conditions (EuRR-Bone) in the Governance of the Management of Rare Bone and Mineral Diseases.
Priego Zurita AL, Boarini M, Casareto L, Cherenko M, Mordenti M, Moroni A, Ahmed SF, Appelman-Dijkstra NM, Sangiorgi L.
Priego Zurita AL, et al.
Calcif Tissue Int. 2024 Nov;115(5):498-506. doi: 10.1007/s00223-024-01256-7. Epub 2024 Jul 26.
Calcif Tissue Int. 2024.
PMID: 39060404
Free PMC article.
Review.
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Data collection on rare bone and mineral conditions in Europe: The landscape of registries and databases.
Priego Zurita AL, Grasemann C, Boarini M, Chapurlat R, Mordenti M; ERN BOND Working Group 5; Javaid MK, Appelman-Dijkstra NM.
Priego Zurita AL, et al.
Eur J Med Genet. 2023 Dec;66(12):104868. doi: 10.1016/j.ejmg.2023.104868. Epub 2023 Oct 30.
Eur J Med Genet. 2023.
PMID: 38832910
Free PMC article.
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