Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation

Search Page

Filters

My NCBI Filters

Results by year

Table representation of search results timeline featuring number of search results per year.

Year Number of Results
2009 1
2010 1
2011 1
2012 1
2015 1
2016 1
2018 1
2019 1
2023 2
2024 0

Text availability

Article attribute

Article type

Publication date

Search Results

9 results

Results by year

Citations

1 article found by citation matching

Search results

Filters applied: . Clear all
Page 1
Attitudes toward genetic research review: results from a survey of human genetics researchers.
Edwards KL, Lemke AA, Trinidad SB, Lewis SM, Starks H, Quinn Griffin MT, Wiesner GL. Edwards KL, et al. Public Health Genomics. 2011;14(6):337-45. doi: 10.1159/000324931. Epub 2011 Apr 11. Public Health Genomics. 2011. PMID: 21487211 Free PMC article.
BACKGROUND: Researchers often relate personal experiences of difficulties and challenges with Institutional Review Board (IRB) review of their human genetic research protocols. ...CONCLUSION: The results from this study provide imp …
BACKGROUND: Researchers often relate personal experiences of difficulties and challenges with Institutional Review Board (IRB) …
Attitudes toward genetic research review: results from a national survey of professionals involved in human subjects protection.
Lemke AA, Trinidad SB, Edwards KL, Starks H, Wiesner GL; GRRIP Consortium. Lemke AA, et al. J Empir Res Hum Res Ethics. 2010 Mar;5(1):83-91. doi: 10.1525/jer.2010.5.1.83. J Empir Res Hum Res Ethics. 2010. PMID: 20235866 Free PMC article.
The recent expansion of human genetics research has raised complex ethical and regulatory issues. ...This anonymous, web-based study elicited the opinions of 208 HSP professionals about review of genetic research. The majority of responde …
The recent expansion of human genetics research has raised complex ethical and regulatory issues. ...This anonymous, we …
Genetics researchers' and IRB professionals' attitudes toward genetic research review: a comparative analysis.
Edwards KL, Lemke AA, Trinidad SB, Lewis SM, Starks H, Snapinn KW, Griffin MQ, Wiesner GL, Burke W; GRRIP Consortium. Edwards KL, et al. Genet Med. 2012 Feb;14(2):236-42. doi: 10.1038/gim.2011.57. Epub 2012 Jan 12. Genet Med. 2012. PMID: 22241102 Free PMC article.
PURPOSE: Genetic research involving human participants can pose challenging questions related to ethical and regulatory standards for research oversight. However, few empirical studies describe how genetic researchers and institutional …
PURPOSE: Genetic research involving human participants can pose challenging questions related to ethical and regulatory …
Safeguarding Participants in Psychiatric Genetic Research: Perspectives of Key Stakeholder Groups.
Rostami M, Dunn LB, Kim JP, Roberts LW. Rostami M, et al. Ethics Hum Res. 2019 Nov;41(6):12-22. doi: 10.1002/eahr.500034. Ethics Hum Res. 2019. PMID: 31743628
This study compared four stakeholder groups' attitudes toward research safeguards. Psychiatric genetic researchers and institutional review board chairs received structured surveys. ...All groups provided higher ratings for the imp …
This study compared four stakeholder groups' attitudes toward research safeguards. Psychiatric genetic resear
Factors that influence a patient's decision to engage in genetic research.
Almutairi A, Alqubaishi FA, Alsolm EA, Binowayn A, Almohammad R, Wani T, Ababtain A, Alkadi U, Alrashed MM, Althagafi M, Abu-Safieh L. Almutairi A, et al. Front Public Health. 2023 May 22;11:865786. doi: 10.3389/fpubh.2023.865786. eCollection 2023. Front Public Health. 2023. PMID: 37283985 Free PMC article.
Additionally, an online survey was conducted to assess the community's knowledge, motivation and barriers to participate in genetic research studies. ...The majority held positive attitudes toward being part of genetic research, wh …
Additionally, an online survey was conducted to assess the community's knowledge, motivation and barriers to participate in geneti
What do people think about genetic engineering? A systematic review of questionnaire surveys before and after the introduction of CRISPR.
Ramos PD, Almeida MS, Olsson IAS. Ramos PD, et al. Front Genome Ed. 2023 Dec 19;5:1284547. doi: 10.3389/fgeed.2023.1284547. eCollection 2023. Front Genome Ed. 2023. PMID: 38192431 Free PMC article.
So far, many surveys assessing public attitudes toward genetic modification have been conducted worldwide. Here, we present the results of a systematic review of primary publications of surveys addressing public attitudes
So far, many surveys assessing public attitudes toward genetic modification have been conducted worldwide. Here, …
A systematic literature review of individuals' perspectives on broad consent and data sharing in the United States.
Garrison NA, Sathe NA, Antommaria AH, Holm IA, Sanderson SC, Smith ME, McPheeters ML, Clayton EW. Garrison NA, et al. Genet Med. 2016 Jul;18(7):663-71. doi: 10.1038/gim.2015.138. Epub 2015 Nov 19. Genet Med. 2016. PMID: 26583683 Free PMC article.
The National Institutes of Health Genomic Data Sharing policy went into effect in 2015, requiring broad consent from almost all research participants. METHODS: We conducted a systematic literature review of attitudes toward biobanking, broad consent, a …
The National Institutes of Health Genomic Data Sharing policy went into effect in 2015, requiring broad consent from almost all research
Public attitudes in Japan toward participation in whole genome sequencing studies.
Okita T, Ohashi N, Kabata D, Shintani A, Kato K. Okita T, et al. Hum Genomics. 2018 Apr 13;12(1):21. doi: 10.1186/s40246-018-0153-7. Hum Genomics. 2018. PMID: 29653595 Free PMC article.
Therefore, it is essential to investigate the general public's attitude toward and understanding of WGS studies. The primary goal of our research is to investigate these issues and to discover how they relate to research participation in WGS studies. . …
Therefore, it is essential to investigate the general public's attitude toward and understanding of WGS studies. The primary g …
Characteristics of users of online personalized genomic risk assessments: implications for physician-patient interactions.
McBride CM, Alford SH, Reid RJ, Larson EB, Baxevanis AD, Brody LC. McBride CM, et al. Genet Med. 2009 Aug;11(8):582-7. doi: 10.1097/GIM.0b013e3181b22c3a. Genet Med. 2009. PMID: 19606049 Free PMC article.
METHODS: Adults aged 25-40 years who were enrolled in a large managed care organization were surveyed. Those eligible could log on to a secure study Web site to review information about the risks and benefits of a SNP-based genetic test and request free testi …
METHODS: Adults aged 25-40 years who were enrolled in a large managed care organization were surveyed. Those eligible could log on to …