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Attitudes toward genetic research review: results from a survey of human genetics researchers.
Edwards KL, Lemke AA, Trinidad SB, Lewis SM, Starks H, Quinn Griffin MT, Wiesner GL. Edwards KL, et al. Public Health Genomics. 2011;14(6):337-45. doi: 10.1159/000324931. Epub 2011 Apr 11. Public Health Genomics. 2011. PMID: 21487211 Free PMC article.
BACKGROUND: Researchers often relate personal experiences of difficulties and challenges with Institutional Review Board (IRB) review of their human genetic research protocols. ...CONCLUSION: The results from this study provide imp …
BACKGROUND: Researchers often relate personal experiences of difficulties and challenges with Institutional Review Board (IRB) …
Attitudes toward genetic research review: results from a national survey of professionals involved in human subjects protection.
Lemke AA, Trinidad SB, Edwards KL, Starks H, Wiesner GL; GRRIP Consortium. Lemke AA, et al. J Empir Res Hum Res Ethics. 2010 Mar;5(1):83-91. doi: 10.1525/jer.2010.5.1.83. J Empir Res Hum Res Ethics. 2010. PMID: 20235866 Free PMC article.
The recent expansion of human genetics research has raised complex ethical and regulatory issues. ...This anonymous, web-based study elicited the opinions of 208 HSP professionals about review of genetic research. The majority of responde …
The recent expansion of human genetics research has raised complex ethical and regulatory issues. ...This anonymous, we …
Genetics researchers' and IRB professionals' attitudes toward genetic research review: a comparative analysis.
Edwards KL, Lemke AA, Trinidad SB, Lewis SM, Starks H, Snapinn KW, Griffin MQ, Wiesner GL, Burke W; GRRIP Consortium. Edwards KL, et al. Genet Med. 2012 Feb;14(2):236-42. doi: 10.1038/gim.2011.57. Epub 2012 Jan 12. Genet Med. 2012. PMID: 22241102 Free PMC article.
However, few empirical studies describe how genetic researchers and institutional review board (IRB) professionals conceptualize ethical issues in genetic research or where common ground might exist. METHODS: Parallel online surveys colle …
However, few empirical studies describe how genetic researchers and institutional review board (IRB) professionals conc …
Safeguarding Participants in Psychiatric Genetic Research: Perspectives of Key Stakeholder Groups.
Rostami M, Dunn LB, Kim JP, Roberts LW. Rostami M, et al. Ethics Hum Res. 2019 Nov;41(6):12-22. doi: 10.1002/eahr.500034. Ethics Hum Res. 2019. PMID: 31743628
Public trust in research depends on implementation of research protections. Genetic and psychiatric research may elicit "exceptionalism," the belief that these types of research deserve special protections. ...This study compared four stakeholde …
Public trust in research depends on implementation of research protections. Genetic and psychiatric research may …
Public attitudes in Japan toward participation in whole genome sequencing studies.
Okita T, Ohashi N, Kabata D, Shintani A, Kato K. Okita T, et al. Hum Genomics. 2018 Apr 13;12(1):21. doi: 10.1186/s40246-018-0153-7. Hum Genomics. 2018. PMID: 29653595 Free PMC article.
Therefore, it is essential to investigate the general public's attitude toward and understanding of WGS studies. The primary goal of our research is to investigate these issues and to discover how they relate to research participation in WGS stu …
Therefore, it is essential to investigate the general public's attitude toward and understanding of WGS studies. The pr …
A systematic literature review of individuals' perspectives on broad consent and data sharing in the United States.
Garrison NA, Sathe NA, Antommaria AH, Holm IA, Sanderson SC, Smith ME, McPheeters ML, Clayton EW. Garrison NA, et al. Genet Med. 2016 Jul;18(7):663-71. doi: 10.1038/gim.2015.138. Epub 2015 Nov 19. Genet Med. 2016. PMID: 26583683 Free PMC article.
The National Institutes of Health Genomic Data Sharing policy went into effect in 2015, requiring broad consent from almost all research participants. METHODS: We conducted a systematic literature review of attitudes toward biobanking, broad consent, a …
The National Institutes of Health Genomic Data Sharing policy went into effect in 2015, requiring broad consent from almost all research
Characteristics of users of online personalized genomic risk assessments: implications for physician-patient interactions.
McBride CM, Alford SH, Reid RJ, Larson EB, Baxevanis AD, Brody LC. McBride CM, et al. Genet Med. 2009 Aug;11(8):582-7. doi: 10.1097/GIM.0b013e3181b22c3a. Genet Med. 2009. PMID: 19606049 Free PMC article.
METHODS: Adults aged 25-40 years who were enrolled in a large managed care organization were surveyed. Those eligible could log on to a secure study Web site to review information about the risks and benefits of a SNP-based genetic test and request free testi …
METHODS: Adults aged 25-40 years who were enrolled in a large managed care organization were surveyed. Those eligible could log on to …