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2003 1
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2018 1
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Balancing benefits and harms: privacy protection policies.
Sarpatwari A, Gagne JJ. Sarpatwari A, et al. Pharmacoepidemiol Drug Saf. 2016 Aug;25(8):969-71. doi: 10.1002/pds.4048. Epub 2016 Jun 9. Pharmacoepidemiol Drug Saf. 2016. PMID: 27278106 No abstract available.
Balancing digital information-sharing and patient privacy when engaging families in the intensive care unit.
Brown SM, Aboumatar HJ, Francis L, Halamka J, Rozenblum R, Rubin E, Sarnoff Lee B, Sugarman J, Turner K, Vorwaller M, Frosch DL; Privacy, Access, and Engagement Task Force of the Libretto Consortium of the Gordon and Betty Moore Foundation. Brown SM, et al. J Am Med Inform Assoc. 2016 Sep;23(5):995-1000. doi: 10.1093/jamia/ocv182. Epub 2016 Mar 16. J Am Med Inform Assoc. 2016. PMID: 26984048
Approaches to identifying the optimal balance between access to digital health information to facilitate engagement and protecting patient privacy are urgently needed. We identified eight themes that should be considered in balancing health information …
Approaches to identifying the optimal balance between access to digital health information to facilitate engagement and protecting
Perinatal substance abuse and human subjects research: are privacy protections adequate?
Marshall MF, Menikoff J, Paltrow LM. Marshall MF, et al. Ment Retard Dev Disabil Res Rev. 2003;9(1):54-9. doi: 10.1002/mrdd.10060. Ment Retard Dev Disabil Res Rev. 2003. PMID: 12587139 Review.
We determine that current protective mechanisms may be insufficient to protect research subjects and that investigators and IRB members are often ignorant of the risks imposed by punitive policy approaches to perinatal substance abuse or fall prey to the same …
We determine that current protective mechanisms may be insufficient to protect research subjects and that investigators and IR …
The Ethics in Synthetics: Statistics in the Service of Ethics and Law in Health-Related Research in Big Data from Multiple Sources.
Bassan S, Harel O. Bassan S, et al. J Law Health. 2018;31(1):87-117. J Law Health. 2018. PMID: 30889335
An ethical advancement of scientific knowledge demands a delicate equilibrium between benefits and harms, in particular in health-related research. When applying and advancing scientific knowledge or technologies, Article 4 of UNESCO's Universal Declaration o …
An ethical advancement of scientific knowledge demands a delicate equilibrium between benefits and harms, in particular in hea …