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Balancing digital information-sharing and patient privacy when engaging families in the intensive care unit.
Brown SM, Aboumatar HJ, Francis L, Halamka J, Rozenblum R, Rubin E, Sarnoff Lee B, Sugarman J, Turner K, Vorwaller M, Frosch DL; Privacy, Access, and Engagement Task Force of the Libretto Consortium of the Gordon and Betty Moore Foundation. Brown SM, et al. J Am Med Inform Assoc. 2016 Sep;23(5):995-1000. doi: 10.1093/jamia/ocv182. Epub 2016 Mar 16. J Am Med Inform Assoc. 2016. PMID: 26984048 Free PMC article.
Approaches to identifying the optimal balance between access to digital health information to facilitate engagement and protecting patient privacy are urgently needed. We identified eight themes that should be considered in balancing health information …
Approaches to identifying the optimal balance between access to digital health information to facilitate engagement and protecting
Perinatal substance abuse and human subjects research: are privacy protections adequate?
Marshall MF, Menikoff J, Paltrow LM. Marshall MF, et al. Ment Retard Dev Disabil Res Rev. 2003;9(1):54-9. doi: 10.1002/mrdd.10060. Ment Retard Dev Disabil Res Rev. 2003. PMID: 12587139 Review.
We determine that current protective mechanisms may be insufficient to protect research subjects and that investigators and IRB members are often ignorant of the risks imposed by punitive policy approaches to perinatal substance abuse or fall prey to the same …
We determine that current protective mechanisms may be insufficient to protect research subjects and that investigators and IR …
The Deceased, Public Health, and Research: Proposing Legal Reforms.
Baltzan I, Knoppers BM, Nemetz ETA, Lerner-Ellis J, Bernier A, Devon K. Baltzan I, et al. Biopreserv Biobank. 2024 Aug;22(4):321-324. doi: 10.1089/bio.2023.0026. Epub 2023 Nov 9. Biopreserv Biobank. 2024. PMID: 37943606
In Ontario, research ethics boards can grant waivers of consent if the Tri-Council Policy Statement-2 conditions are met. These include that the individual is not harmed, that the materials are essential to the research, and that privacy will be protected
In Ontario, research ethics boards can grant waivers of consent if the Tri-Council Policy Statement-2 conditions are met. These inclu …
Risk-stratified cancer screening: A consensus-based conceptual framework from EUCanScreen.
Giorgi Rossi P, Senore C, Giordano L, Veron L, Haddad T, Guida A, Vicentini M, Leoni F, Bonvicini L, Colombo C, Armaroli P, Venturelli F, Ferrante G, Piccinelli C, Betti E, Schittecatte G, Fervers B, Tarasenko Y, Campari C, Deandrea S, Buron A, Barrufet C, Antoljak N, Yiallourou A, Korobeinikova E, Gardeazabal I, López López C, Siebert U, Di Pumpo M, Portillo Villares MI, Sroczynski G, Jahn B, Andreassen T, Delaloge S, Mantellini P. Giorgi Rossi P, et al. Eur J Cancer. 2026 Jun 3;240:116746. doi: 10.1016/j.ejca.2026.116746. Epub 2026 Apr 12. Eur J Cancer. 2026. PMID: 41997037 Free article. Review.
METHODS: We conducted a scoping review to identify definitions, key outcomes, benefits and harms, and ethical considerations relevant to risk-stratified screening. The findings informed a structured brainstorming session and a two-round Delphi survey among EUCanScre …
METHODS: We conducted a scoping review to identify definitions, key outcomes, benefits and harms, and ethical considerations r …
Respect, justice and learning are limited when patients are deidentified data subjects.
Gross MS, Hood AJ, Rubin JC, Miller RC Jr. Gross MS, et al. Learn Health Syst. 2022 Mar 4;6(3):e10303. doi: 10.1002/lrh2.10303. eCollection 2022 Jul. Learn Health Syst. 2022. PMID: 35860318 Free PMC article.
Next, we consider the effectiveness of deidentification for minimizing harms via privacy protection and maximizing benefits via promoting learning and translational care. ...Such a system may permit exacerbation of health disparities as it accelerates …
Next, we consider the effectiveness of deidentification for minimizing harms via privacy protection and maximizing b
Challenges and implications of the use of artificial intelligence in health care, with an emphasis on nursing. Scoping review.
Shah N, Bala J, Sharma A, Parmar JS, Singh D. Shah N, et al. Invest Educ Enferm. 2025 Sep;43(3):e15. doi: 10.17533/udea.iee.v43n3e15. Invest Educ Enferm. 2025. PMID: 41289539 Free PMC article.
General Search Items included artificial intelligence ethics, AI in healthcare challenges, nursing AI implications, algorithmic bias healthcare, informed consent AI, privacy data protection AI, and WHO AI guidelines, combined with Boolean operators (e.g., "AI AND nu …
General Search Items included artificial intelligence ethics, AI in healthcare challenges, nursing AI implications, algorithmic bias healthc …
Beyond the genome: Ethical, social and legal implications of epilepsy genetics.
Satishchandra P, Deresse B, Ranganath P. Satishchandra P, et al. Epilepsy Behav. 2026 Mar;176:110922. doi: 10.1016/j.yebeh.2026.110922. Epub 2026 Jan 31. Epilepsy Behav. 2026. PMID: 41621156 Review.
RESULTS: Ethical issues in epilepsy genetic testing include ensuring informed consent, respecting autonomy, protecting confidentiality and privacy, and balancing the interests of individuals, parents, and society, particularly in the case of genetic testing f …
RESULTS: Ethical issues in epilepsy genetic testing include ensuring informed consent, respecting autonomy, protecting confidentialit …
Privacy in perspective: research participants' priorities and concerns related to sharing data generated in human neuroscience studies.
Guerrini CJ, Robinson JO, Crossnohere NL, Majumder MA, Jones KM, Brooks WB, Sheth SA, McGuire AL. Guerrini CJ, et al. Neuroethics. 2025 Aug;18(2):37. doi: 10.1007/s12152-025-09609-1. Epub 2025 Aug 4. Neuroethics. 2025. PMID: 40821358
The societal benefits from sharing and reusing data collected in human neuroscience studies are widely appreciated. ...Respondents prioritized sharing practices that maximize reuse of data to benefit patients and reduce the possibility of misuse of shared data. Most …
The societal benefits from sharing and reusing data collected in human neuroscience studies are widely appreciated. ...Respondents pr …
The Ethics in Synthetics: Statistics in the Service of Ethics and Law in Health-Related Research in Big Data from Multiple Sources.
Bassan S, Harel O. Bassan S, et al. J Law Health. 2018;31(1):87-117. J Law Health. 2018. PMID: 30889335
The National Institution of Health [NIH] Data Sharing Policy and Implementation Guidance similarly states that data necessary for drawing valid conclusions and advancing medical research should be made as widely and freely available as possible (in order to share the be
The National Institution of Health [NIH] Data Sharing Policy and Implementation Guidance similarly states that data necessary for dra …
11 results