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Development and content validity testing of a patient-reported outcomes questionnaire for the assessment of hereditary angioedema in observational studies.
Bonner N, Abetz-Webb L, Renault L, Caballero T, Longhurst H, Maurer M, Christiansen S, Zuraw B; Icatibant Outcome Survey (IOS) International Executive Committee and the Hereditary Angioedema Association (HAEA) Medical Advisory Board. Bonner N, et al. Health Qual Life Outcomes. 2015 Jul 1;13:92. doi: 10.1186/s12955-015-0292-7. Health Qual Life Outcomes. 2015. PMID: 26129930 Free PMC article.
Japanese and French translation and linguistic validation of a patient-reported outcome tool to assess quality of life in patients with Immune Thrombocytopenia (ITP): the ITP Life Quality Index (ILQI).
Tomiyama Y, Cheze S, Grant L, Bonner N, Affinito S, Nagano M, Rajput T, Viana R. Tomiyama Y, et al. Among authors: bonner n. Int J Hematol. 2022 Oct;116(4):500-527. doi: 10.1007/s12185-022-03382-0. Epub 2022 Jun 8. Int J Hematol. 2022. PMID: 35675024 Free PMC article.
Assessing Asthma Symptoms in Adolescents and Adults: Qualitative Research Supporting Development of the Asthma Daily Symptom Diary.
Gater A, Nelsen L, Fleming S, Lundy JJ, Bonner N, Hall R, Marshall C, Staunton H, Krishnan JA, Stoloff S, Schatz M, Haughney J; Patient-Reported Outcome Consortium’s Asthma Working Group. Gater A, et al. Among authors: bonner n. Value Health. 2016 Jun;19(4):440-50. doi: 10.1016/j.jval.2016.01.007. Epub 2016 Mar 30. Value Health. 2016. PMID: 27325336 Free article.
Development and validation of Gaucher disease type 1 (GD1)-specific patient-reported outcome measures (PROMs) for clinical monitoring and for clinical trials.
Elstein D, Belmatoug N, Deegan P, Göker-Alpan Ö, Hughes DA, Schwartz IVD, Weinreb N, Bonner N, Panter C, Fountain D, Lenny A, Longworth L, Miller R, Shah K, Schenk J, Sen R, Zimran A. Elstein D, et al. Among authors: bonner n. Orphanet J Rare Dis. 2022 Jan 6;17(1):9. doi: 10.1186/s13023-021-02163-y. Orphanet J Rare Dis. 2022. PMID: 34991656 Free PMC article.
37 results