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Disease impact on general well-being and therapeutic expectations of European Type II and Type III spinal muscular atrophy patients.
Neuromuscul Disord. 2017 May;27(5):428-438. doi: 10.1016/j.nmd.2017.01.018. Epub 2017 Feb 3.
Neuromuscul Disord. 2017.
PMID: 28237437
Understanding the relationship between the 32-item motor function measure and daily activities from an individual with spinal muscular atrophy and their caregivers' perspective: a two-part study.
Duong T, Braid J, Staunton H, Barriere A, Petridis F, Reithinger J, Cruz R, Jarecki J, De Lemus M, Gusset N, Broekgaarden R, Randhawa S, Flynn J, Arbuckle R, Reif S, Yang L, De Martini A, Vuillerot C.
Duong T, et al. Among authors: broekgaarden r.
BMC Neurol. 2021 Mar 31;21(1):143. doi: 10.1186/s12883-021-02166-z.
BMC Neurol. 2021.
PMID: 33789607
Free PMC article.
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Correction to: Understanding the relationship between the 32-item motor function measure and daily activities from an individual with spinal muscular atrophy and their caregivers' perspective: a two-part study.
Duong T, Braid J, Staunton H, Barriere A, Petridis F, Reithinger J, Cruz R, Jarecki J, De Lemus M, Gusset N, Broekgaarden R, Randhawa S, Flynn J, Arbuckle R, Reif S, Yang L, De Martini A, Vuillerot C.
Duong T, et al. Among authors: broekgaarden r.
BMC Neurol. 2021 Sep 13;21(1):354. doi: 10.1186/s12883-021-02307-4.
BMC Neurol. 2021.
PMID: 34517827
Free PMC article.
No abstract available.
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The role of patient advocacy organisations in neuromuscular disease R&D--The case of the Dutch neuromuscular disease association VSN.
Boon W, Broekgaarden R.
Boon W, et al. Among authors: broekgaarden r.
Neuromuscul Disord. 2010 Feb;20(2):148-51. doi: 10.1016/j.nmd.2009.10.012.
Neuromuscul Disord. 2010.
PMID: 20106662
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The role of patient advocacy organizations in shaping medical research: the Pompe model.
House T, O'Donnell K, Saich R, Di Pietro F, Broekgaarden R, Muir A, Schaller T.
House T, et al. Among authors: broekgaarden r.
Ann Transl Med. 2019 Jul;7(13):293. doi: 10.21037/atm.2019.04.28.
Ann Transl Med. 2019.
PMID: 31392205
Free PMC article.
Review.
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