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Page 1
Lung function in patients with primary ciliary dyskinesia: an iPCD Cohort study.
Halbeisen FS, Goutaki M, Spycher BD, Amirav I, Behan L, Boon M, Hogg C, Casaulta C, Crowley S, Haarman EG, Karadag B, Koerner-Rettberg C, Loebinger MR, Mazurek H, Morgan L, Nielsen KG, Omran H, Santamaria F, Schwerk N, Thouvenin G, Yiallouros P, Lucas JS, Latzin P, Kuehni CE. Halbeisen FS, et al. Among authors: crowley s. Eur Respir J. 2018 Aug 23;52(2):1801040. doi: 10.1183/13993003.01040-2018. Print 2018 Aug. Eur Respir J. 2018. PMID: 30049738 Free article.
The international primary ciliary dyskinesia cohort (iPCD Cohort): methods and first results.
Goutaki M, Maurer E, Halbeisen FS, Amirav I, Barbato A, Behan L, Boon M, Casaulta C, Clement A, Crowley S, Haarman E, Hogg C, Karadag B, Koerner-Rettberg C, Leigh MW, Loebinger MR, Mazurek H, Morgan L, Nielsen KG, Omran H, Schwerk N, Scigliano S, Werner C, Yiallouros P, Zivkovic Z, Lucas JS, Kuehni CE; PCD Italian Consortium; Swiss PCD Group; French Reference Centre for Rare Lung Diseases; Genetic Disorders of Mucociliary Clearance Consortium. Goutaki M, et al. Among authors: crowley s. Eur Respir J. 2017 Jan 4;49(1):1601181. doi: 10.1183/13993003.01181-2016. Print 2017 Jan. Eur Respir J. 2017. PMID: 28052956 Free PMC article.
Growth and nutritional status, and their association with lung function: a study from the international Primary Ciliary Dyskinesia Cohort.
Goutaki M, Halbeisen FS, Spycher BD, Maurer E, Belle F, Amirav I, Behan L, Boon M, Carr S, Casaulta C, Clement A, Crowley S, Dell S, Ferkol T, Haarman EG, Karadag B, Knowles M, Koerner-Rettberg C, Leigh MW, Loebinger MR, Mazurek H, Morgan L, Nielsen KG, Phillipsen M, Sagel SD, Santamaria F, Schwerk N, Yiallouros P, Lucas JS, Kuehni CE; PCD Israeli Consortium; Swiss PCD Group; French Reference Centre for Rare Lung Diseases. Goutaki M, et al. Among authors: crowley s. Eur Respir J. 2017 Dec 21;50(6):1701659. doi: 10.1183/13993003.01659-2017. Print 2017 Dec. Eur Respir J. 2017. PMID: 29269581 Free article.
Pulmonary exacerbations in patients with primary ciliary dyskinesia: an expert consensus definition for use in clinical trials.
Lucas JS, Gahleitner F, Amorim A, Boon M, Brown P, Constant C, Cook S, Crowley S, Destouches DMS, Eber E, Mussaffi H, Haarman E, Harris A, Koerner-Rettberg C, Kuehni CE, Latzin P, Loebinger MR, Lorent N, Maitre B, Moreno-Galdó A, Nielsen KG, Özçelik U, Philipsen LKD, Pohunek P, Polverino E, Rademacher J, Robinson P, Snijders D, Yiallouros P, Carr SB. Lucas JS, et al. Among authors: crowley s. ERJ Open Res. 2019 Feb 1;5(1):00147-2018. doi: 10.1183/23120541.00147-2018. eCollection 2019 Feb. ERJ Open Res. 2019. PMID: 30723730 Free PMC article.
Time trends in diagnostic testing for primary ciliary dyskinesia in Europe.
Halbeisen FS, Shoemark A, Barbato A, Boon M, Carr S, Crowley S, Hirst R, Karadag B, Koerner-Rettberg C, Loebinger MR, Lucas JS, Maitre B, Mazurek H, Özçelik U, Martinů V, Schwerk N, Thouvenin G, Tschanz SA, Yiallouros P, Goutaki M, Kuehni CE. Halbeisen FS, et al. Among authors: crowley s. Eur Respir J. 2019 Oct 24;54(4):1900528. doi: 10.1183/13993003.00528-2019. Print 2019 Oct. Eur Respir J. 2019. PMID: 31273043 Free article. No abstract available.
Registries and collaborative studies for primary ciliary dyskinesia in Europe.
Ardura-Garcia C, Goutaki M, Carr SB, Crowley S, Halbeisen FS, Nielsen KG, Pennekamp P, Raidt J, Thouvenin G, Yiallouros PK, Omran H, Kuehni CE. Ardura-Garcia C, et al. Among authors: crowley s. ERJ Open Res. 2020 May 26;6(2):00005-2020. doi: 10.1183/23120541.00005-2020. eCollection 2020 Apr. ERJ Open Res. 2020. PMID: 32494577 Free PMC article. Review.
Late Diagnosis of Infants with PCD and Neonatal Respiratory Distress.
Goutaki M, Halbeisen FS, Barbato A, Crowley S, Harris A, Hirst RA, Karadag B, Martinu V, Morgan L, O'Callaghan C, Ozçelik U, Scigliano S, Ucros S, Yiallouros P, Schulzke SM, Kuehni CE. Goutaki M, et al. Among authors: crowley s. J Clin Med. 2020 Sep 4;9(9):2871. doi: 10.3390/jcm9092871. J Clin Med. 2020. PMID: 32899853 Free PMC article.
Access to medicines for rare diseases: beating the drum for primary ciliary dyskinesia.
Crowley S, Azevedo I, Boon M, Bush A, Eber E, Haarman E, Karadag B, Kötz K, Leigh M, Moreno-Galdó A, Mussaffi H, Nielsen KG, Omran H, Papon JF, Pohunek P, Priftis K, Rindlisbacher B, Santamaria F, Valiulis A, Witt M, Yiallouros P, Zivkovic Z, Kuehni CE, Lucas JS. Crowley S, et al. ERJ Open Res. 2020 Sep 14;6(3):00377-2020. doi: 10.1183/23120541.00377-2020. eCollection 2020 Jul. ERJ Open Res. 2020. PMID: 32964005 Free PMC article.
The BEAT-PCD (Better Experimental Approaches to Treat Primary Ciliary Dyskinesia) Clinical Research Collaboration.
Goutaki M, Crowley S, Dehlink E, Gaupmann R, Horton KL, Kouis P, Lam YT, Loges NT, Lucas JS, Roehmel JF, Shoemark A; BEAT-PCD Clinical Research Collaboration. Goutaki M, et al. Among authors: crowley s. Eur Respir J. 2021 Feb 4;57(2):2004601. doi: 10.1183/13993003.04601-2020. Print 2021 Feb. Eur Respir J. 2021. PMID: 33541936 Free article. No abstract available.
542 results