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Psychometric properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire.
Chai-Adisaksopha C, Skinner MW, Curtis R, Frick N, Nichol MB, Noone D, O'Mahony B, Page D, Stonebraker J, Thabane L, Crowther M, Iorio A. Chai-Adisaksopha C, et al. Among authors: noone d. BMJ Open. 2018 Aug 8;8(8):e021900. doi: 10.1136/bmjopen-2018-021900. BMJ Open. 2018. PMID: 30093520 Free PMC article.
Participants were enrolled if they were more than 10 years old and people with haemophilia A or B or people without a bleeding disorder. ...CONCLUSIONS: The results of this study suggest that PROBE is a valid questionnaire for evaluating PROs in people with haemophilia
Participants were enrolled if they were more than 10 years old and people with haemophilia A or B or people without a bleeding disord …
Exploring regional variations in the cross-cultural, international implementation of the Patient Reported Outcomes Burdens and Experience (PROBE) study.
Chai-Adisaksopha C, Skinner MW, Curtis R, Frick N, Nichol MB, Noone D, O'Mahony B, Page D, Stonebraker J, Thabane L, Crowther MA, Iorio A. Chai-Adisaksopha C, et al. Among authors: noone d. Haemophilia. 2019 May;25(3):365-372. doi: 10.1111/hae.13703. Epub 2019 Mar 12. Haemophilia. 2019. PMID: 30861270
We used analysis of variance methods and multivariable regression to determine the relative contribution of the variance explained by region controlling for haemophilia diagnosis, age group and levels of educations. ...Age and haemophilia diagnosis contributed 3.42% …
We used analysis of variance methods and multivariable regression to determine the relative contribution of the variance explained by region …
Test-retest properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire and its constituent domains.
Chai-Adisaksopha C, Skinner MW, Curtis R, Frick N, Nichol MB, Noone D, O'Mahony B, Page D, Stonebraker J, Thabane L, Crowther MA, Iorio A. Chai-Adisaksopha C, et al. Among authors: noone d. Haemophilia. 2019 Jan;25(1):75-83. doi: 10.1111/hae.13649. Epub 2018 Dec 6. Haemophilia. 2019. PMID: 30520534
BACKGROUND: The Patient Reported Outcomes, Burdens and Experiences (PROBE) study aims to develop and validate questionnaire for assessing health status in patients with haemophilia and participants without bleeding disorders. ...For haemophilia-related questions (T1 …
BACKGROUND: The Patient Reported Outcomes, Burdens and Experiences (PROBE) study aims to develop and validate questionnaire for assessing he …
Barriers and challenges faced by women with congenital bleeding disorders in Europe: Results of a patient survey conducted by the European Haemophilia Consortium.
Noone D, Skouw-Rasmussen N, Lavin M, van Galen KPM, Kadir RA. Noone D, et al. Haemophilia. 2019 May;25(3):468-474. doi: 10.1111/hae.13722. Epub 2019 Apr 29. Haemophilia. 2019. PMID: 31034126
METHODS: The European Haemophilia Consortium (EHC) developed a questionnaire for WBD to provide insights into the barriers and challenges faced by WBD in Europe. ...Respondents registered with Haemophilia Treatment Centres (HTC) are 2.2 times more likely to receive …
METHODS: The European Haemophilia Consortium (EHC) developed a questionnaire for WBD to provide insights into the barriers and challe …
Issues in assessing products for the treatment of hemophilia - the intersection between efficacy, economics, and ethics.
Farrugia A, Noone D, Schlenkrich U, Schlenkrich S, O'Mahony B, Cassar J. Farrugia A, et al. Among authors: noone d. J Blood Med. 2015 Jun 15;6:185-95. doi: 10.2147/JBM.S79091. eCollection 2015. J Blood Med. 2015. PMID: 26124687 Free PMC article.
The application of evidence-based medicine has enhanced the basis of hemophilia therapy, while resulting in some challenges to patient care. ...We synthesize these converging developments to suggest some changes to the current hemophilia treatment paradigm, which sh …
The application of evidence-based medicine has enhanced the basis of hemophilia therapy, while resulting in some challenges to patien …
Understanding minimum and ideal factor levels for participation in physical activities by people with haemophilia: An expert elicitation exercise.
Martin AP, Burke T, Asghar S, Noone D, Pedra G, O'Hara J. Martin AP, et al. Among authors: noone d. Haemophilia. 2020 Jul;26(4):711-717. doi: 10.1111/hae.13985. Epub 2020 Apr 8. Haemophilia. 2020. PMID: 32268007
INTRODUCTION: The benefits of physical activity (PA) for people with haemophilia (PWH) may include improvements in joint, bone and muscle health. ...METHODS: Based on the 2017 National Hemophilia Foundation PA descriptions, clinical experts estimated a minimally acc …
INTRODUCTION: The benefits of physical activity (PA) for people with haemophilia (PWH) may include improvements in joint, bone and mu …
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