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Hopes, concerns, satisfaction and regret in a precision medicine trial for childhood cancer: a mixed-methods study of parent and patient perspectives.
Wakefield CE, Hetherington K, Robertson EG, Donoghoe MW, Hunter JD, Vetsch J, Marron JM, Tucker KM, Marshall GM, Broom A, Haber M, Tyrrell V, Malkin D, Lau L, Mateos MK, O'Brien TA, Ziegler DS. Wakefield CE, et al. Among authors: hetherington k. Br J Cancer. 2023 Nov;129(10):1634-1644. doi: 10.1038/s41416-023-02429-1. Epub 2023 Sep 19. Br J Cancer. 2023. PMID: 37726477 Free PMC article.
Precision Medicine Is Changing the Roles of Healthcare Professionals, Scientists, and Research Staff: Learnings from a Childhood Cancer Precision Medicine Trial.
Daly R, Hetherington K, Hazell E, Wadling BR, Tyrrell V, Tucker KM, Marshall GM, Ziegler DS, Lau LMS, Trahair TN, O'Brien TA, Collins K, Gifford AJ, Haber M, Pinese M, Malkin D, Cowley MJ, Karpelowsky J, Drew D, Jacobs C, Wakefield CE. Daly R, et al. Among authors: hetherington k. J Pers Med. 2023 Jun 23;13(7):1033. doi: 10.3390/jpm13071033. J Pers Med. 2023. PMID: 37511646 Free PMC article.
Parents' expectations, preferences, and recall of germline findings in a childhood cancer precision medicine trial.
McGill BC, Wakefield CE, Tucker KM, Daly RA, Donoghoe MW, Vetsch J, Warby M, Fuentes-Bolanos NA, Barlow-Stewart K, Kirk J, Courtney E, O'Brien TA, Marshall GM, Pinese M, Cowley MJ, Tyrrell V, Deyell RJ, Ziegler DS, Hetherington K. McGill BC, et al. Among authors: hetherington k. Cancer. 2023 Nov 15;129(22):3620-3632. doi: 10.1002/cncr.34917. Epub 2023 Jun 29. Cancer. 2023. PMID: 37382186 Free PMC article.
Protocol for a comprehensive prospective cohort study of trio-based whole-genome sequencing for underlying cancer predisposition in paediatric and adolescent patients newly diagnosed with cancer: the PREDICT study.
Fuentes Bolanos NA, Padhye B, Daley M, Hunter J, Hetherington K, Warby M, Courtney E, Kirk J, Josephi-Taylor S, Chen Y, Alvaro F, Barlow-Stewart K, Wong-Erasmus M, Barahona P, Ajuyah P, Altekoester AK, Tyrrell VJ, Lau LMS, Wakefield C, Sylvester D, Tucker K, Pinese M, Dalla Pozza L, O'Brien TA. Fuentes Bolanos NA, et al. Among authors: hetherington k. BMJ Open. 2023 May 30;13(5):e070082. doi: 10.1136/bmjopen-2022-070082. BMJ Open. 2023. PMID: 37253493 Free PMC article.
'Advocacy groups are the connectors': Experiences and contributions of rare disease patient organization leaders in advanced neurotherapeutics.
Nguyen CQ, Kariyawasam D, Alba-Concepcion K, Grattan S, Hetherington K, Wakefield CE, Woolfenden S, Dale RC, Palmer EE, Farrar MA. Nguyen CQ, et al. Among authors: hetherington k. Health Expect. 2022 Dec;25(6):3175-3191. doi: 10.1111/hex.13625. Epub 2022 Oct 28. Health Expect. 2022. PMID: 36307981 Free PMC article.
What's in a Name? Parents' and Healthcare Professionals' Preferred Terminology for Pathogenic Variants in Childhood Cancer Predisposition Genes.
Hunter JD, Robertson EG, Hetherington K, Ziegler DS, Marshall GM, Kirk J, Marron JM, Denburg AE, Barlow-Stewart K, Warby M, Tucker KM, Lee BM, O'Brien TA, Wakefield CE. Hunter JD, et al. Among authors: hetherington k. J Pers Med. 2022 Aug 18;12(8):1327. doi: 10.3390/jpm12081327. J Pers Med. 2022. PMID: 36013276 Free PMC article.
50 results