Qualitative Exploration of Triangulated, Shared Decision-Making in Rheumatoid Arthritis

Arthritis Care Res (Hoboken). 2019 Dec;71(12):1576-1582. doi: 10.1002/acr.23801.

Abstract

Objective: Treat-to-target implementation in rheumatoid arthritis (RA) requires a shared decision-making (SDM) process. However, ability to pay is a major determinant of patient choice, but how this factor affects SDM is under-explored.

Methods: Visits at 4 RA clinics during which patients faced a decision to change their treatment were audiotaped between May 2016 and June 2017. Audiotapes were transcribed verbatim and analyzed using qualitative framework analysis.

Results: A total of 156 visits were analyzed. Most patients with RA, except those with effective insurance coverage, had deliberations disrupted or sidelined by third-party insurance providers having power to authorize the preferred disease-modifying antirheumatic drug choice. This triangulated SDM complicated efficiency in deliberations and timely treatment and was a barrier to shared engagement about health risks and symptom improvement typically found in patient-provider dyads.

Conclusion: Rheumatology care providers should aim to incorporate treatment costs and ability to pay into their deliberations so that individualized out-of-pocket estimates can be considered during triangulated SDM at the point-of-care.

Publication types

  • Multicenter Study
  • Research Support, N.I.H., Extramural
  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adult
  • Aged
  • Aged, 80 and over
  • Antirheumatic Agents / economics
  • Antirheumatic Agents / therapeutic use*
  • Arthritis, Rheumatoid / diagnosis
  • Arthritis, Rheumatoid / drug therapy*
  • Arthritis, Rheumatoid / economics
  • Attitude of Health Personnel
  • Cost of Illness*
  • Decision Making, Shared*
  • Early Diagnosis*
  • Female
  • Follow-Up Studies
  • Humans
  • Insurance Coverage / economics*
  • Male
  • Middle Aged
  • Patient Participation
  • Physician-Patient Relations
  • Qualitative Research*
  • Retrospective Studies
  • Time Factors

Substances

  • Antirheumatic Agents